Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice


deaja

Recommended Posts

deaja Rookie

Hi, everyone!

I'd appreciate any advice as I'm really new to this and have been reading a variety of sources. I have been having symptoms since last summer and they got progressively worse. In October, I started undergoing tests for all kinds of GI problems. Everything came up normal. But they never tested for celiac. My doctor tested for celiac via a bloodtest and I'll get the results on Monday. For the last week, I've been doing a gluten-free diet as my doctor said the blood test isn't always 100% reliable.

It's been a week, and I'm feeling a lot better! I'm not 100% better, but the stomach bloating is much better, naseau almost gone, etc. I was wondering though if the fact that I am still having some symptoms after a week could still be from the gluten I had in my system? Or if it were gluten, should I be feeling completely better by now?

Second main question is a lot of the gluten-free products I have found are corn based. Corn has always irritated my stomach some; when I have more than a little, I feel sick from that too. Are there many gluten-free products that aren't corn based? (For example, I had tortilla chips for lunch and corn based pasta for dinner and am feeling kind of queasy. But it's a different kind of queasy than when I've had gluten products. If that makes sense.)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Omitch Newbie

Hi, everyone!

I'd appreciate any advice as I'm really new to this and have been reading a variety of sources. I have been having symptoms since last summer and they got progressively worse. In October, I started undergoing tests for all kinds of GI problems. Everything came up normal. But they never tested for celiac. My doctor tested for celiac via a bloodtest and I'll get the results on Monday. For the last week, I've been doing a gluten-free diet as my doctor said the blood test isn't always 100% reliable.

It's been a week, and I'm feeling a lot better! I'm not 100% better, but the stomach bloating is much better, naseau almost gone, etc. I was wondering though if the fact that I am still having some symptoms after a week could still be from the gluten I had in my system? Or if it were gluten, should I be feeling completely better by now?

Second main question is a lot of the gluten-free products I have found are corn based. Corn has always irritated my stomach some; when I have more than a little, I feel sick from that too. Are there many gluten-free products that aren't corn based? (For example, I had tortilla chips for lunch and corn based pasta for dinner and am feeling kind of queasy. But it's a different kind of queasy than when I've had gluten products. If that makes sense.)

Thanks!

Hi Deaja,

I've been gluten free for about 3 weeks and am feeling better as each week passes. Apparently it can take quite a while for you to feel better after starting a gluten-free diet. Some people take a few weeks, others over 12 months. I'm not a diagnosed Coeliac but have 2 children with it and I seem to have many of the symptoms so have just started going gluten-free cos it's just easier in our household anyway! I can't answer your question on corn, but keep up your gluten-free diet and I'm sure you'll feel better as each week passes! :)

Teri Lou Apprentice

I have had buckwheat and rice based pasta which were both pretty good, although it seems weird to think the buckWHEAT pasta was gluten free but it was hehe.....it took me several weeks to feel better after starting gluten-free diet...good luck!

Hi Deaja,

I've been gluten free for about 3 weeks and am feeling better as each week passes. Apparently it can take quite a while for you to feel better after starting a gluten-free diet. Some people take a few weeks, others over 12 months. I'm not a diagnosed Coeliac but have 2 children with it and I seem to have many of the symptoms so have just started going gluten-free cos it's just easier in our household anyway! I can't answer your question on corn, but keep up your gluten-free diet and I'm sure you'll feel better as each week passes! :)

mushroom Proficient

It is way too soon to make a judgment on gluten. Give yourself a good three weeks to settle into the diet and for your body to adjust to it. That being said, corn could definitely be a problem for you too. I don't tolerate corn any better than I tolerate gluten, and it is about as hard to get rid of. :( You may find you tolerate more highly processed corn (as in cornstarch) better than you do the whole kernel corn - or you may not. Try to eliminate both and see how you do. Some of us initially also have to eliminate lactose in milk, ice cream, cream, etc., until healing takes place in our small intestine.

Just stay with it and adjust your diet if you start reacting to other things. Sometimes these other intolerances are only temporary.

Korwyn Explorer

Hi deaja,

Mushroom is right in that it is way too soon to make any kind of definitive decision, but the fact that you are feeling better already should tell you something. If you have celiac disease (even if it is undiagnosed) it can take a long time to heal depending on the degree of intestinal damage, as well as any secondary issues caused due to malabsorption. As far as the corn issue, I can't tolerate refined or processed corn well at all. Fresh or frozen whole kernel I can eat as much as I want! Stoneground corn/corn meal I can eat some, corn syrup or corn meal is a bad idea. Actually, over the last couple years I have found that to be pretty much the case with all grains and most starches. I also had to give up all nightshades for a good 8-10 months or so. Now I can eat some if it isn't more than once or twice a week in smaller amounts - keeping in mind that I used to down a whole quart of pickled jalepenos or peppercinis in an evening. So smaller is relative! =)

But seriously, my diet (and my wifes) is mostly what I guess you would call a paleo diet. She eats more grains that I do, but I have found that I can eat pretty much anything now as long as it isn't a refine sugar, grain, starch, (cow) casein, (cow) lactose, or soy (in any form including soy lecithin), and I limit and rotate my veggie intake. On the positive side of this, once I made this change I lost 70 pounds in about 6 months without changing anything else in my life. I never drank pop (and still don't), ate pretty health before. But my body just developed a general dislike for anything grain related especially. I think that part of it is that I developed leaky gut syndrome due to the gluten issue (read up on zonulin and gluten) and my body just doesn't want to have anything to due with them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,564
    • Most Online (within 30 mins)
      7,748

    Anne65
    Newest Member
    Anne65
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.