Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

High Fructose Corn Syrup

Woolygimp

Recommended Posts

Woolygimp Contributor
Woolygimp
Posted

Well I'm feeling great. I don't remember my thought clarity being this good, or having this amount of energy...ever. I went from barely being able to walk from one side of my house to another, struggling to lift my arms, swollen facial skin, asthma, and just generally extremely poor health and now I feel awesome, and the only thing I changed was my diet. Today I started running again... something I haven't managed to do in nearly 8 years. I have diagnosed Sjogrens, along with Celiac disease, and my salivary function/skin/eyes felt great and were very watery, something I can't ever remember them doing. Normally I'm use to dealing with the excruciatingly dry mouth but it's been gone.

Definitely holding my breath and hoping the improvements remain.

Was gluten free for years. Didn't help.

Cut out dairy a few weeks ago, improved a lot... but relapsed immediately if I had any whatsoever.

Stopped all grains and improved again but I'd have bad days and good days and was generally inconsistent.

Took a few days of a food diary to find out what was causing the inconsistency and still causing me to feel poor. High Fructose Corn Syrup.

Apparently I'm allergic to it, along with just a couple dozen other foods, including all grains. I assumed that it was like distilled vinegar and "safe" and never really even considered that there was a possibility that I was reacting to it. I knew it was main from corn, obviously, but I didn't think that there were any residual traces of corn in it, or not enough to cause me to react.

But I was reacting to it.

It's even innocuous because a LOT of fruit beverages, especially fruit punches and even orange juice have the stuff added to them so you have to be pretty diligent with identifying it.

I have grown to absolutely loathe this country [America] and our government because of things like this. HFCS is in every food/beverage that we consume because of our unnecessary subsidies of corn and other grain crops. Beverages most other places in the world are still flavored by sugar, which while unhealthy is at least known to be safe. But NO not in America, we're going to flavor everything with corn... which is not only a low quality sweetener and tastes terrible, but is much more dangerous for you, especially those with allergies to corn, than the alternatives.

And to heck with doctors too. I was sick for eight years and they had no solutions to any of my problems. Every visit, every medication was a massive waste of time and money. Sorry, I had to rant... I'm just very upset the last 8 years of my life from 17-25, my best years, were wasted because our government doesn't give a damn about the health of its citizens. We can't even get proper gluten free labeling laws passed.

I'm not one for conspiracy theories but there's no way that nobody in a position of power, authority, or in a medical field knew about what food could do to you if you develop antibodies to it. They've been herp-derp about gluten sensitivity/celiac disease for over 80 years without ANY progress, even though it's been linked to every autoimmune disease imaginable and is probably one of the most common ailments in Americans. But no, banning stem cell research and online poker are more important.

I stopped by a local hospital to get a quick refill for a medication, sat in the waiting room from 11pm to 2am, then spent another 45 minutes in the doctor's office waiting. He walks in and says, "refill huh?" I said, "yeah" and it took him 15 seconds to scribble the Rx out and then he says, "have a good night" and walks out. I got billed for $8,500.

Sometimes I feel like we're still in the bloody stone age.

/rant off and sorry for the language.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


annegirl Explorer
annegirl
Posted

Hey, I get the frustration. :) I've spent 15-28 dealing with this junk. But like you, feeling great, losing weight and loving life!

If you're reacting to HFCS then you will want to be careful of xanthan gum, caramel color (you'd be surprised what it sneaks into - like balsamic vinegar) and iodized salt. They all have corn stuff that I react to really bad like HFCS.

Yay for feeling better (when I don't eat things like dairy that is ;) )

chasbari Apprentice
chasbari
Posted

HFCS.. evil on so many levels.

Pretty outrageous bill there as well. Covered? Question it all anyway. All the more reason to question what was on that bull.. er, I mean .. bill.

Woolygimp Contributor
Woolygimp
Posted
  • Author

HFCS.. evil on so many levels.

Pretty outrageous bill there as well. Covered? Question it all anyway. All the more reason to question what was on that bull.. er, I mean .. bill.

I didn't have insurance at the time and was around 20 years old and remember thinking that they'd have to take me to court to get that money. I'd have paid something reasonable- and maybe $500 or so without much fuss, but not 8k. Not for a medication refill. The only bill I've torn up and refused to pay.

jenngolightly Contributor
jenngolightly
Posted

I just found Sierra Mist Natural - finally! A soda that's not made with HFCS!

Cinderella10 Newbie
Cinderella10
Posted

I just found Sierra Mist Natural - finally! A soda that's not made with HFCS!

It's a happy thing. Also, check out (Throwback) Pepsi and (Heritage) Dr. Pepper. Both are made with sugar instead of HFCS. :)

  • 2 months later...
SkyRed70 Newbie
SkyRed70
Posted

I just found Sierra Mist Natural - finally! A soda that's not made with HFCS!

I used to love that stuff! Too bad I can't have it anymore. :-( I've been allergic to corn for 2.5 months. Sierra Mist Natural does have citric acid, which is almost always from corn in the US so I have heard on another corn allergy forum. So if corn is an issue for you, be cautious. Citric acid gives me migraines, dry itchy skin, and the same feeling I get right before I get a really bad cold...post nasal drip, achy, like I've been hit by a MACK truck...blech!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Holy cow! Xanthan gum is from corn? Great, NOW what do I use for baking my gluten free, corn free, taste free bread?! :angry:

annegirl Explorer
annegirl
Posted

Holy cow! Xanthan gum is from corn? Great, NOW what do I use for baking my gluten free, corn free, taste free bread?! :angry:

I use guar gum for things with chocolate (I think it has a strong flavor), I've used unflavored gelatin with sucess, you can also make a slurry out of flaxseed and hot water and wait until it gets thick and gummy and use that. None of them really get that "elastic" feeling going, but I don't have anything to compare it to because I didn't have a chance to buy xanthan gum before I realized I was reacting to it.

I pretty much try to cook with recipes that don't call for all the gums and starches. They give me indigestion anyway. Take a look at Elana's Pantry online. She bakes with almond meal and all the stuff turns out delicious! She has two books out, one of them multi purpose and the other all kinds of cupcake recipes. I have been very pleased with the recipes.

As for bread - try the Gluten Free Bread 2.0 on Elana's Pantry website. I love this bread. It is not the fluffy type so if that's what you're looking for you won't enjoy it. It has more of a rye consistency with great flavor. I make my sandwiches open faced and they are yummy!

Hope that helps!

psawyer Proficient
psawyer
Posted

Holy cow! Xanthan gum is from corn? Great, NOW what do I use for baking my gluten free, corn free, taste free bread?! :angry:

Open Original Shared Link can be made from almost anything from which a sugar can be extracted. Corn is one option. There are many. The source can be dairy as well as plant. The key determinant is the fermenting agent, the Xanthomonas Campestris bacterium.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    2. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
    5. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.