Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can Happen To Me?

Simona19

Recommended Posts

Simona19 Collaborator
Simona19
Posted

I'm fructose intolerant. I would like to ask:

What can happen to me, if I will eat more fructose than I suppose to?

I know that I will have cramp, bloating ..., but can something happen to my intestines like with gluten? Do I need to avoid all fruit forever. So far I can tolerate only berries. Even orange, or banana is out. I will eat them like ones, twice per week, but with consequences.

After going gluten free I react strongly to everything. Why?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

I'm fructose intolerant. I would like to ask:

What can happen to me, if I will eat more fructose than I suppose to?

I know that I will have cramp, bloating ..., but can something happen to my intestines like with gluten? Do I need to avoid all fruit forever. So far I can tolerate only berries. Even orange, or banana is out. I will eat them like ones, twice per week, but with consequences.

After going gluten free I react strongly to everything. Why?

its not all fruit- only fruit with a higher fructose content than sucrose content. i can eat plenty of berries and pineapple.. i can do a 1/2 of a banana more ripe than unripe, and a little bit of peaches & mango. and plenty of lemons and limes. most of the other fruits hurt me- esp. pears & dates. OH- i can also do some watermelon too.

google Fructose Malabsorption & the FODmap diet- every page may have a different list- so some of the items may be trial and error for you.

i have a friend online who had horrible fructose malabsorption (yes, she's also gluten free and dairy free)... anyways- she is now on the RAW VEGAN diet and hasnt had bad reactions to fructose so far. but i cant go ALL RAW VEGAN, as i also need to eat meat, and have to avoid corn & soy- so not my thing but i'd like to do it maybe 30%.

im thinking it might be possible that FM only has to be temporary- maybe our systems arent healed yet- or maybe we're deficient in some digestive enzymes... or maybe we have SIBO... i dont know- i hope it's temporary

i read somewhere but cant remember where- that if you continue to eat foods that hurt you so much that you cant digest- that it can mess up your kidneys.??

so, do some research- there is definitely SOME fruit you can eat!

Simona19 Collaborator
Simona19
Posted
  • Author

its not all fruit- only fruit with a higher fructose content than sucrose content. i can eat plenty of berries and pineapple.. i can do a 1/2 of a banana more ripe than unripe, and a little bit of peaches & mango. and plenty of lemons and limes. most of the other fruits hurt me- esp. pears & dates. OH- i can also do some watermelon too.

google Fructose Malabsorption & the FODmap diet- every page may have a different list- so some of the items may be trial and error for you.

i have a friend online who had horrible fructose malabsorption (yes, she's also gluten free and dairy free)... anyways- she is now on the RAW VEGAN diet and hasnt had bad reactions to fructose so far. but i cant go ALL RAW VEGAN, as i also need to eat meat, and have to avoid corn & soy- so not my thing but i'd like to do it maybe 30%.

im thinking it might be possible that FM only has to be temporary- maybe our systems arent healed yet- or maybe we're deficient in some digestive enzymes... or maybe we have SIBO... i dont know- i hope it's temporary

i read somewhere but cant remember where- that if you continue to eat foods that hurt you so much that you cant digest- that it can mess up your kidneys.??

so, do some research- there is definitely SOME fruit you can eat!

Hi! Thank you for reply. I know that I can have some fruit, but I

11475 Apprentice
11475
Posted

Hi! Thank you for reply. I know that I can have some fruit, but I

Simona19 Collaborator
Simona19
Posted
  • Author

Hi, this may not be of any help to you personally, but it might. Have a look into amine, salicylate and glutamate sensitivities/reactions. The onion and green beans may be giving you problem related to fructose malabsorption, but cauliflower, broccoli, other vegetables, fruits that should be fine etc, may be due to salicylates and/or amines. Again - it might not be what's causing problems for you, but it's something to investigate and cross off the list if you are looking for other options.

Good luck!

I checked the list of fruit and vegetables and how high is the amount of salicytes in them and to my surprise everything fits. I will react very strongly to some vegetables, fruit and they will be in category of high or very high content. Thank you for your suggestion. It does look like this is IT.

Open Original Shared Link

Open Original Shared Link

+ other things :(:blink:

What should I eat? I do feel that I'm allergic or intolerant to everything. Can I have problems with enzymes in stomach, or some hormonal imbalance? I mean digestive hormones.

cassP Contributor
cassP
Posted

I checked the list of fruit and vegetables and how high is the amount of salicytes in them and to my surprise everything fits. I will react very strongly to some vegetables, fruit and they will be in category of high or very high content. Thank you for your suggestion. It does look like this is IT.

Open Original Shared Link

Open Original Shared Link

+ other things :(:blink:

What should I eat? I do feel that I'm allergic or intolerant to everything. Can I have problems with enzymes in stomach, or some hormonal imbalance? I mean digestive hormones.

you might be deficient in a lot of digestive enzymes.... i think if you're going thru phases where you only eat rice- then you're not getting any enzymes - so then, maybe it becomes a vicious cycle. ??

look at the lists above.. and also the fm lists- and get creative cause you gotta get some veggies and fruits down.

what about pineapple??? try it- it's supposed to help u with digestion- and it never hurts me. maybe also start juicing with the produce u CAN eat..... that way u can get a lot of nutrients in u.

also- do u eat yogurt??? i tend to have issues with dairy- and i never liked yogurt- but i started eating goat yogurt- and OMG YUM- i am addicted to the vanilla - and it really has made my BMs much more pleasant - and also my intestines seem more happier.

and YES- i can COMPLETELY relate to you about the real painful gas that doesnt ever come out - or takes forever- i COMPLETELY know what this is. it's always slow to come out... like 36 hrs sometimes. i could be making this up- but i THINK it's better since going on thyroid meds...

it was really bad after my colonoscopy- and the nurses were pissing me off big time- cause u know most people feel perfect afterwards- others just have some gas the rest of the day- well i had my painful gas- that wouldnt come out- and they were like:" oh you cant leave till you've passed a lot of gas"... and i was like "I KNOW MY BODY- THIS COULD TAKE 24 HOURS TO COME OUT"... nurse" try to turn from side to side- that helps"... me, after trying:" I JUST WANNA GO HOME AND LAY ON MY STOMACH ON A HEATING PAD".. nurse: " why dont u go use the restroom and see if it will come out".. me: " not with my iv in- i cant move- please take it out"....

OMG, this went on for some time- i think i ended up just lying and saying it was mostly all out LORD HAVE MERCY... itactually took me 5 days to get back to normal <_<

Simona19 Collaborator
Simona19
Posted
  • Author

you might be deficient in a lot of digestive enzymes.... i think if you're going thru phases where you only eat rice- then you're not getting any enzymes - so then, maybe it becomes a vicious cycle. ??

look at the lists above.. and also the fm lists- and get creative cause you gotta get some veggies and fruits down.

what about pineapple??? try it- it's supposed to help u with digestion- and it never hurts me. maybe also start juicing with the produce u CAN eat..... that way u can get a lot of nutrients in u.

also- do u eat yogurt??? i tend to have issues with dairy- and i never liked yogurt- but i started eating goat yogurt- and OMG YUM- i am addicted to the vanilla - and it really has made my BMs much more pleasant - and also my intestines seem more happier.

and YES- i can COMPLETELY relate to you about the real painful gas that doesnt ever come out - or takes forever- i COMPLETELY know what this is. it's always slow to come out... like 36 hrs sometimes. i could be making this up- but i THINK it's better since going on thyroid meds...

it was really bad after my colonoscopy- and the nurses were pissing me off big time- cause u know most people feel perfect afterwards- others just have some gas the rest of the day- well i had my painful gas- that wouldnt come out- and they were like:" oh you cant leave till you've passed a lot of gas"... and i was like "I KNOW MY BODY- THIS COULD TAKE 24 HOURS TO COME OUT"... nurse" try to turn from side to side- that helps"... me, after trying:" I JUST WANNA GO HOME AND LAY ON MY STOMACH ON A HEATING PAD".. nurse: " why dont u go use the restroom and see if it will come out".. me: " not with my iv in- i cant move- please take it out"....

OMG, this went on for some time- i think i ended up just lying and saying it was mostly all out LORD HAVE MERCY... itactually took me 5 days to get back to normal <_<

On top of my lactose intolerance I developed real milk allergy. I can’t have any milk. I will eat coconut yogurt from time to time (when I have money to visit Whole food store). I will buy plain or some times chocolate. I will have abdominal pain after any fruit flavor.

It is possible that I don’t have enough of digestive enzymes. Why? I don’t know. The truth is - I do eat mostly rice based food - milk, cereal, Udi’s bread, rice in my dinner and other.

Every week I will make vegetable soup in a bigger pot and I will eat it almost every day. I will cook in it many types of vegetables (even cauliflower or broccoli) . I will eat my soup, even if I know up front that I will have problems later.

Pineapple always gave mi mouth allergy. It got to the point that I ate just one slice and I had mouth burning, bloody sores on my tongue and very itchy throat. I have that also with cantaloupe.

I have allergy on all nuts( anaphylactic shock after 1 Brazil nut), peanuts, honey (choking and coughing and kiwi (the same reaction as honey), pineapple and cantaloupe( mouth allergy) , few times I had same reaction to watermelon. I have fructose intolerance, I was lactose intolerant and now I have casein allergy - milk is out. Than I have acid reflux - every food that is causing reflux is out for me (some time I will eat them anyway).

On top I will react very badly to any onion, garlic, beans, cabbage, broccoli, cauliflower, Clementine, plum, peach, and other.

I will eat them from time to time because I crave them, but with consequences.

I wish that I was able to eat everything again. Everything started after one surgery in 2005. It happened on Wednesday. Later, on Monday, my father went to ER with breathing problems (blood). He had surgery on Wednesday and died at 3:34AM on Saturday same week. He was 54 years old. I thing this was my breaking point. 7 months later I had anaphylactic shock and more and more intolerances and allergies (even to medicines). I started to react to dairy with BM from 5 to 15 minutes. Occasionally I had unexplained D. I got fat.

Last year by accident I found out that I have beginning of celiac disease - Marsh1, casein allergy, fructose intolerance and SIBO. Hm

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 weeks later...
Leli Newbie
Leli
Posted

I've been through what you describe - this is what I know. I hope some of it helps.

Gas production that doesn't come out is probably not in the colon - it's probably in the small intestine. Gas is produced by bacteria, but you're not supposed to have so many gas producing bacteria in your small intestine. The bacteria are most likely the kind that love fructose and other short chain sugars (which you get in fruits and veges), which is why fruit hurts you - the bacteria have a feast and produce lots of gas which give you cramps. The osmotic load in the gut is also changed, so water is either pumped in, causing diarrhea, or pumped out, causing constipation. Google FODMAPS. It will explain what's going on in more detail. Here's pubmed on FODMAPS. It's technical, and you can find lots of easier stuff out there.

Open Original Shared Link

Stress can bring on changes in the gut that cause this (sounds like Irritable Bowel Syndrome) which would explain the connection to your father's passing. My condolences.

If you starve these bacteria by depriving them of what they eat, they will reduce in number, and if you take a good probiotic you can maybe replace them, or crowd them out.

Reactions to salicylates are usually neurological, not gastric. You might have flushing and feelings of heat, and/or irritability and brain fog, or hives, or breathing difficulties. I have been extremely salicylate sensitive, and then I found this study:

Open Original Shared Link

Basically, if I take plenty of fish oil I'm ok with a moderate dose of salicylates! It's a whole new world for me! But I'm not sure salicylates are the problem for you. There's a big cross-over - lots of things are full of FODMAPS and salicylates, but the symptoms are different for each sensitivity.

So, if you reduce your fruit intake, and take a probiotic, and fish oil, you will hopefully improve. The other thing to consider is that with gut problems comes poor absorption of nutrients. This is, I think, the answer to your original question - what can happen? If you can't take in nutrients because your gut isn't functioning properly, even though your diet might be full of vitamins you could become deficient. Then all sorts of things can go wrong. Everyone is different and I could not diagnose vitamin deficiency, but it's likely you would benefit form some supplements. If you can get vitamin serum levels (blood tests) done you'll know what to take - otherwise consider vit D3, magnesium, and a mixed B vitamin with maybe extra B12. Always take with food.

Do you eat meat? I recommend it, and fish, and I recommend completely avoiding anything processed. Don't be afraid of olive oil and butter, but don't use other vegetable oils. No corn, soy, sunflower, safflower, canola or rapeseed oil. They are high in inflammatory omega 6 fatty acids, and highly processed. Eat what vegetables you can - they are usually lower in sugars.

Doing these things has saved me. For a while I could eat only rice, lettuce and meat, but now I can eat vegetable soup and berries and even drink coffee. I have reasonable energy most days, and almost never have the sort of gut symptoms you describe any more.

I hope this helps you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.