Curious About Correlations

[milkmommy]

HI Everyone,

Im am wondering if anyone knows if there is a correlation between what is seen on an endoscopy and recovery time or marsh score?

I havent seen my GI for the biopsy results however my family dr gave me a printout of the endoscopy procedure. It stated "loss of folds, nodular mucosa and scalloping in the first and second portion of the duodenum." Is that normal for celiac patients? is it any sign of severity or what marsh score it correlates with?????

As I have posted previously, I have been gluten free since April 20th and my symptoms have gotten much worse!

[mushroom]

I don't know what kind of damage correlates with what Marsh score, but I do believe that regardless of the severity of the damage to your intestine your recovery time will depend on

1. How strictly you conform to the diet

2. How strictly you refrain from lactose during the recovery period

3. How many other (if any) intolerances you have and how quickly (if any) you find them out.

You seem to be a candidate for a strictly whole foods diet of meat, veggies, fruit, rice, nuts until you get a stable diet that you tolerate. Then add foods back in one at a time, avoiding the top eight allergens such as corn, peanuts, eggs, fish,soy, etc. Cook your vegetables, peel the skins off apples, pears, tomatoes, all those tough hard to digest skins, and let your GI system settle down for a little bit.

[sb2178]

That sounds like pretty severe loss, but I don't think you can directly tell a Marsh score from that macro-level description (which would be based on photos/doctor's view).

Edit: Yes, that is a typical assessment for celiac disease. Anecdotally, when an MD sees that even when endo'ing for another reason, they know to take biopsies for the micro (villi) view of celiac disease damage.

[milkmommy]

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

[ravenwoodglass]

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

The whole food diet we speak of is simply food in it's natural form. Meat, chicken, fish, eggs, veggies and fruits, potatos and rice etc. that are not processed or premade. If stuff is in it's natural form when we cook it then the risk of cross contamination from food processing is pretty low.

Do make sure you have changed out stuff like your toaster, wooden cutting boards and utensils and scratched non stick pans as gluten can get us from stuff that has been used for gluten foods.

[Dee777]

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

Hello!

I am new here too, diagnosed January 25/11. I am going through a rather nasty period of illness right now going on 7 weeks with a so far accumulated weight loss of over thirty pounds. I believe this happened because I seem to not be responding to the gluten free diet. That, or I am doing something wrong or getting cross contaminated in some way... I seem to be on the upward swing of things now thank goodness, and thanks to those here who have given me sound advice and their shoulders to cry on! I just wanted to let you know that I am following the "whole foods" diet myself and that along with some excellent probiotics appears to be turning things around for me. Good luck to you, the whole foods is a great idea until you get a handle on the whole thing!

Dee