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Possible Symptoms?


Scphotomom

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Scphotomom Newbie

brain fog

speach loss, cant get words out correctly

abdominal pain

digestive pain hours after eating

severe persistent heart burn

dizziness

migraines, frequent

runny nose and sneezing after meals

diarrhea

constipation

tail bone pain

chronic fatigue

auto immune disorders

type 1 diabetes

hypothyroidism

Also struggle with obesity

Always hungry


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WinterSong Community Regular

It definitely sounds like you've got a lot of symptoms that many people on this board experience as a result of their Celiac or gluten intolerance. It couldn't hurt to see your doctor and ask for a blood test/Celiac panel.

Scphotomom Newbie

I have a small intestine biopsy scheduled for 6-24. That's the soonest they could work me in. I hate it because I really want to go gluten free now. But I don't want to mess up the test

JCastro Newbie

Don't go gluten free yet even though it may be tempting because you will feel better (I'm sure you know that). You have almost all of the same symptoms I do. I will never get diagnosed because I started gluten free first and I will never go back to eating gluten so I can get tested. But yes, your symptoms sound very much like mine...stick it out hopefully the end is near!:-)

Scphotomom Newbie

I guess I just keep doubting it. Like part of me thinks they'll do the test and it will be negative. I don't know many obese people talking about having celiacs

psawyer Proficient

While the more common presentation in celiac disease is being underweight due to malabsorption, some people gain weight due to celiac disease, and lose it after going gluten-free. Sadly, there are still some doctors out there who believe that if you are overweight you can not have celiac disease. :angry:

Scphotomom Newbie

I was shocked my doctor even agreed to test me with my weight issue. I think I'll cry if I'm not a celiac. It means I have all these problems listed above plus some and no answers as to why


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      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
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      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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    • deanna1ynne
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