Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Officially Unofficial


Sparks

Recommended Posts

Sparks Rookie

I spoke with my doctor today, and based on my reaction to adding wheat back in to a gluten free diet, I've been diagnosed with Gluten Intolerance. He doesn't think it's celiac (even though I've never been tested for celiac...) and says the only thing I can do is minimize gluten.

On one hand, it's nice to have a doctor agreeing that this is a serious problem. On the other, I'm concerned that he would dismiss celiac without testing at all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

Maybe he is one of the few doctors that know that you would have to return to a full gluten diet for quite awhile to get useful test results. If you are already reacting it may not be worth it to go through misery for a test that is often inconclusive.

cahill Collaborator

I spoke with my doctor today, and based on my reaction to adding wheat back in to a gluten free diet, I've been diagnosed with Gluten Intolerance. He doesn't think it's celiac (even though I've never been tested for celiac...) and says the only thing I can do is minimize gluten.

On one hand, it's nice to have a doctor agreeing that this is a serious problem. On the other, I'm concerned that he would dismiss celiac without testing at all.

I am more concerned that he suggested that you just "minimize gluten" :ph34r:

Gluten intolerance or celiac's the treatment is the same a100% gluten free diet!!

Sparks Rookie

I agree that it's probably not worth it when the treatment is the same. And at least he didn't try to tell me it was all in my head. :)

Edit: He's not the most enlightened doctor, no. Luckily I found this board so I know exactly what "minimize" means.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,684
    • Most Online (within 30 mins)
      7,748

    Denise9
    Newest Member
    Denise9
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
    • Mari
      Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten.  Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with Celiacs is that normal digestion will only break down gluten to the point where the small fragments will still cause a reaction. GliadinX will break down the fragments so that they are too small to start the autoimmune reaction.  The label on my bottle reads'it works in the stomach' and that is ver concentrated so 1 capsule is the recomm Hope this helps/Have a lovely cruise.ended dose for each meal. 
    • StevieP.
      Thanks so much for that information!! That helps me out alot!!
×
×
  • Create New...