Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Wasting...

rbeccatexas

Recommended Posts

rbeccatexas Rookie
rbeccatexas
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marc49 Explorer
Marc49
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

I assume you are female, or I would suggest low testosterone.

There are many causes of muscle wasting. Some have to do with malabsorption, and some are neurologically based.

Certain drugs can cause this as well, including statins.

Your protein levels in blood work should tell you if you are absorbing enough protein or not though.

rbeccatexas Rookie
rbeccatexas
Posted
  • Author

I assume you are female, or I would suggest low testosterone.

There are many causes of muscle wasting. Some have to do with malabsorption, and some are neurologically based.

Certain drugs can cause this as well, including statins.

Your protein levels in blood work should tell you if you are absorbing enough protein or not though.

Thanks Marc.

Yes, I'm a female. I was just wondering if anyone else is experiencing this due to the Celiac. If it is the norm.

Marc49 Explorer
Marc49
Posted

Thanks Marc.

Yes, I'm a female. I was just wondering if anyone else is experiencing this due to the Celiac. If it is the norm.

I have no doubt that celiac can cause muscle wasting due to malabsorption of protein and necessary nutrients. Just pointing out that a lot of other things can cause it as well.

As before though, if your protein levels in your general bloodwork are good then that should rule out malabsorption I would think. I lost about 10 pounds of muscle myself due to low testosterone that seems to have largely been caused by my gluten intolerance.

My levels have come up significantly since I have been gluten-free, and I am gaining muscle back slowly. I just had my regular blood work done last week and my protein levels were fine,.....about mid-range. I have also been taking 5,000 IU's of Vitamin D3 for a few months now. I was as low as 19, and now I am about 45. I want to be between 60 and 80 for a goal though.

eatmeat4good Enthusiast
eatmeat4good
Posted

I had severe muscle wasting before diagnosis. If it is happening after you have been gluten free for a couple of years I would have the Dr. look for possible causes. Make sure you take your vitamins and that you are consuming enough protein...and that you aren't getting gluten of course. I hope will post what you find out.

rbeccatexas Rookie
rbeccatexas
Posted
  • Author

I had severe muscle wasting before diagnosis. If it is happening after you have been gluten free for a couple of years I would have the Dr. look for possible causes. Make sure you take your vitamins and that you are consuming enough protein...and that you aren't getting gluten of course. I hope will post what you find out.

Thanks yall. I actually have not been to the Dr since my diagnosis as I have no health insurance right now. I've read on here before where someone was losing the padding on their feet, hands and face. That is happening to me as well. It seems like I have alot more fat on my stomach (bloating) and thighs (losing the padding on my butt and hips). But I can feel the bones right underneith my skin on my arms.

I'm going to try to get on a strength building routine when I start working in a couple of months to see if that helps. Do yall ever crave fat....like fat off of a piece of steak (not the grissel)? I've been doing this for a while now. I know we crave what our bodies need, but my family thinks I'm weird to want this. And I never craved it before. Sometimes I feel like I'm going crazy with this disease and I wish I could just jump out of my body.

cyberprof Enthusiast
cyberprof
Posted

Thanks yall. I actually have not been to the Dr since my diagnosis as I have no health insurance right now. I've read on here before where someone was losing the padding on their feet, hands and face. That is happening to me as well. It seems like I have alot more fat on my stomach (bloating) and thighs (losing the padding on my butt and hips). But I can feel the bones right underneith my skin on my arms.

I'm going to try to get on a strength building routine when I start working in a couple of months to see if that helps. Do yall ever crave fat....like fat off of a piece of steak (not the grissel)? I've been doing this for a while now. I know we crave what our bodies need, but my family thinks I'm weird to want this. And I never craved it before. Sometimes I feel like I'm going crazy with this disease and I wish I could just jump out of my body.

Even though you aren't craving it, I'd try eating avacados, extra olive oil and nuts, if you aren't intolerant of these. Have you tried flax oil or fish oil - capsules or liquid? These oils are very good and help with the healing. I'm not saying not to eat beef fat, just that these are really good for celiacs.

And are you menopausal? Or post-menopausal? It could be that too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rbeccatexas Rookie
rbeccatexas
Posted
  • Author

Even though you aren't craving it, I'd try eating avacados, extra olive oil and nuts, if you aren't intolerant of these. Have you tried flax oil or fish oil - capsules or liquid? These oils are very good and help with the healing. I'm not saying not to eat beef fat, just that these are really good for celiacs.

And are you menopausal? Or post-menopausal? It could be that too.

I've been craving avacado too. I must need good fat. I'm 40. My OBGYN says I'm not perimenopausal since I get my cycle on the dot each month. Idk, I chalked my moodiness up to diet. So I don't think that's it. Thanks for all of your input everyone.

CarolinaKip Community Regular
CarolinaKip
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

I loss muscle due to celiac. I didnt know it at the time, but my body paid a high price. I lost a lot of muscle and weight due to my celiac. I won't go TMI, but it was bad! Now being a year gluten-free, I'm regaining some of it back! If you haven't, perhaps look at what you are eating,add exercise, and vitamins. Also check with your DR. Some blood work for what vitamins you are lacking.

  • 3 weeks later...
Neshema1 Newbie
Neshema1
Posted

Check out your creatinine levels to see if they are low. As would be the case with muscle wasting. You might want to be checked for mitochondrial myopathy as it can be associated with celiac & muscle wasting, but then agAin so can malnutrition & low protein. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.