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Feeling Victorious


firefightersgal

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firefightersgal Apprentice

Last August, I began to suspect that I have celiac disease. I had a terrible rash, achy joints, and unexplainable infertility/miscarriage. After doing a lot of research, it seemed like a clear explanation for everything I was experiencing. However, my doctor was reluctant to confirm my suspicions when my blood test came back negative. He went on to test me for RA and hepatitis (both were also negative, obviously). I elected to go gluten-free on my own and started feeling better almost immediately. I had a few accidental (and some not-so accidental) glutenings and felt bad again, so there was no question in my mind. Also, my cycles returned to normal after at least four years of being all over the place.

Just a few days ago, I had another accidental glutening. I woke the next morning with my DH rash, so I decided to call the doctor and ask if he wanted to do a skin biopsy. He got me in that same afternoon to discuss options. He said he could do more specific blood tests and/or a biopsy, but that it would all be expensive. He also said that with the consistency of my symptoms (or lack thereof), he is now convinced that I have celiac disease. He didn't feel any further testing was necessary, because it wouldn't change the treatment.

So anyway, after nearly a year of feeling like my doctor didn't take me seriously, I now feel victorious.


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Takala Enthusiast

B)

Congratulations !

Debbie B in MD Explorer

That is great that your doc is on board. I am sorry about the glutening, but you will be feeling great soon.

cahill Collaborator

Isn't validation WONDERFUL !!

We know our own body but it sure is nice to have that validation from the "professionals :P "

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