Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Victorious


firefightersgal

Recommended Posts

firefightersgal Apprentice

Last August, I began to suspect that I have celiac disease. I had a terrible rash, achy joints, and unexplainable infertility/miscarriage. After doing a lot of research, it seemed like a clear explanation for everything I was experiencing. However, my doctor was reluctant to confirm my suspicions when my blood test came back negative. He went on to test me for RA and hepatitis (both were also negative, obviously). I elected to go gluten-free on my own and started feeling better almost immediately. I had a few accidental (and some not-so accidental) glutenings and felt bad again, so there was no question in my mind. Also, my cycles returned to normal after at least four years of being all over the place.

Just a few days ago, I had another accidental glutening. I woke the next morning with my DH rash, so I decided to call the doctor and ask if he wanted to do a skin biopsy. He got me in that same afternoon to discuss options. He said he could do more specific blood tests and/or a biopsy, but that it would all be expensive. He also said that with the consistency of my symptoms (or lack thereof), he is now convinced that I have celiac disease. He didn't feel any further testing was necessary, because it wouldn't change the treatment.

So anyway, after nearly a year of feeling like my doctor didn't take me seriously, I now feel victorious.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

B)

Congratulations !

Debbie B in MD Explorer

That is great that your doc is on board. I am sorry about the glutening, but you will be feeling great soon.

cahill Collaborator

Isn't validation WONDERFUL !!

We know our own body but it sure is nice to have that validation from the "professionals :P "

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      21

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood Test for Celiac wheat type matters?

    3. - cristiana replied to Ginger38's topic in Related Issues & Disorders
      21

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - GlutenFreeChef posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood Test for Celiac wheat type matters?

    5. - Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
      2

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,079
    • Most Online (within 30 mins)
      7,748

    GlutenFreeChef
    Newest Member
    GlutenFreeChef
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Amen! I'm already bothering my doctor about getting an updated vaccine!
    • Scott Adams
      The type of wheat does not matter for the test--all wheat contains gluten. You need to eat lots of wheat daily for 6-8 weeks before a blood test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • cristiana
      Sorry... I accepted it!  I don't want shingles EVER again! 
    • GlutenFreeChef
      I finally am seeing a GI specialist after being gluten free for over 10 years. When I turned 30 an allergy panel stated that I was allergic to wheat, barley, rye, oats, peanuts, soy, and crab/lobster. A friend who worked at a pharmacy said my results looked just like hers and that I was probably celiac or severely gluten sensitive, so I stopped eating gluten and everything else on my list. I felt better. Since November of 2024 I've been having issues that looked like thyroid, but could be EoE in combination with perimenopause and went off of dairy as well, which provided relief. While in Europe in November I decided to try eating wheat because I kept hearing rumors that I may not react to their wheat, and I didn't. I was so glad that now I'm importing it to make my own breads. My Homeopathic doctor said it was probably the glyphosates and pesticides that I am allergic too or reacting too, not the gluten. The GI wants to retest me for celiac and told me that I would need to switch back to American wheat products for the test to come out positive otherwise I may test negative since European wheat is different. This makes no sense to me. Gluten is gluten and is in the flour there as well as here. Please help, I don't want to ingest the pesticides and glyphosates for this test as I get severe migraines, bloating and joint pain when I do eat American wheat products. That is how I know I've had cross-contamination at restaurants. Does the type of wheat really matter???? I am so conflicted with this. The GI was getting irritated with me insisting that if gluten was really the issue that it would still show up regardless of where the wheat came from.
    • Scott Adams
      Speaking from experience, and as someone who was taking zinc in my multivitamins at the time of my outbreak, I would not rely on zinc or other supplements to prevent a shingles outbreak. That is what the new, extremely effective, 2 shot shingles vaccine is for, and this vaccine is very effective at preventing outbreaks. In my case I've not had shingles symptoms since I had the vaccine, which was over 10 years ago. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.