Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Else Suffered From Bi-Lateral Pleural Effusions?

Massachusettschick

Recommended Posts

Massachusettschick Newbie
Massachusettschick
Posted

I am hoping that someone else may have had a similar experience. I am a 41 year old female who was diagnosed with Celiacs 11 years ago. I try to adhere to the gluten free life style though I often fall off the wagon, and three months ago developed a dry cough that coincided with a bout of my Celiacs acting up. After admitting myself to the ER for shortness of breath it turns out that I have recurrent bi-pleural effusions as well as ascites in my pelvis and a small amount around my liver. I have been tested for everything and my pulmonologist believes that this is linked to my Celiacs. They can't find t-cell lymphoma nor early onset of t-cell lymphoma. I have been experiencing symptoms for over three months and actively been seeking a diagnosis for the last month. Does anyone have any thoughts? I appreciate any comments!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. I don't know if those problems could be related. If this sort of thing happens because of inflammation (I don't know if it does) then it is possible that the inflammation that usually comes with a glutening might have contributed to the issue. I really don't know and perhaps someone with more knowledge can be more helpful

You really need to stick to the diet. Whenever you go off it your body is forming and flaring antibodies that can attack just about any organ. I do hope you are feeling better soon. If there is anything we can do to help you get and stay strict in the diet just let us know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      35

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    2. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point...
    3. Wheatwacked
      - Wheatwacked replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

      So, since total iga 646, was high , was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease. Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded...
    4. Wheatwacked
      - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement

      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
    5. Wheatwacked
      - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement

      edited after your post: "one cup of canned prune juice has 707 mg of potassium, while half a cup of dried prunes has 635 mg... whole prunes provide more fiber and fewer calories per serving." - google When I complained of constipation due to my BP meds my doctor recommened prune juice without hesitation, When I bother to eat Prunes or plums it...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,342
    • Most Online (within 30 mins)
      7,748
    Mariebelle
    Newest Member
    Mariebelle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
    • Wheatwacked
      ttg iga high (646 mg/dl) other results are normal

      By Wheatwacked · Posted

      So, since total iga 646, was high ,  was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease.  Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded brings improvement, will you continue to eat gluten and suffering since the doctor says you are not sick? Your list of symptoms, mostly unrelated to each other, certainly fits the pattern of celiac disease.  Do you really have nine different diseases, all with cause unknown?  
    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      edited after your post: "one cup of canned prune juice has 707 mg of potassium, while half a cup of dried prunes has 635 mg... whole prunes provide more fiber and fewer calories per serving." - google  When I complained of constipation due to my BP meds my doctor recommened prune juice without hesitation,  When I bother to eat Prunes or plums it works.   I think the fruit is better for you than the juice for addition nutrients.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I do include chia seeds and ground flax seed in my diet to help as well but on days that I'm not close to my target of 30 grams of fiber, I would add the Benefiber. My IBS-C was much better with both natural foods and the supplement so I will continue to search for another natural supplement that is not based on wheat to have when needed. Thanks 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.