Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Else Suffered From Bi-Lateral Pleural Effusions?


Massachusettschick

Recommended Posts

Massachusettschick Newbie

I am hoping that someone else may have had a similar experience. I am a 41 year old female who was diagnosed with Celiacs 11 years ago. I try to adhere to the gluten free life style though I often fall off the wagon, and three months ago developed a dry cough that coincided with a bout of my Celiacs acting up. After admitting myself to the ER for shortness of breath it turns out that I have recurrent bi-pleural effusions as well as ascites in my pelvis and a small amount around my liver. I have been tested for everything and my pulmonologist believes that this is linked to my Celiacs. They can't find t-cell lymphoma nor early onset of t-cell lymphoma. I have been experiencing symptoms for over three months and actively been seeking a diagnosis for the last month. Does anyone have any thoughts? I appreciate any comments!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. I don't know if those problems could be related. If this sort of thing happens because of inflammation (I don't know if it does) then it is possible that the inflammation that usually comes with a glutening might have contributed to the issue. I really don't know and perhaps someone with more knowledge can be more helpful

You really need to stick to the diet. Whenever you go off it your body is forming and flaring antibodies that can attack just about any organ. I do hope you are feeling better soon. If there is anything we can do to help you get and stay strict in the diet just let us know.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.