Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


Boss'Wife

Recommended Posts

Boss'Wife Rookie

Hi all I am from SE Ks and was just diagnosed last Tuesday with Celiac....Lets just say this first week has been rather difficult. Not sure what I can or can't eat or drink. I love Dr. Pepper but According to the food list I found I can't have carmel coloring ugh and it's in everything... Any help would be greatly appreciated.

Thank you ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten free overseas Apprentice

Dr. Pepper is gluten free. This is the info from their web site:

Q: Does Dr Pepper contain gluten?

A: All of our products are considered gluten-free. Note: All products, which contain High Fructose Corn Syrup, may contain trace amounts of corn gluten. According to the Celiac Sprue Association, corn gluten is not harmful to people with Celiac Sprue disease. We encourage consumers with specific questions about Celiac Sprue to contact the Celiac Sprue Association at www.csaceliacs.org.

So... if corn doesn't bother you, go ahead and drink Dr. Pepper.

kareng Grand Master

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

psawyer Proficient

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

All true. I'll add maltodextrin to the list of myths--its gluten-free for sure. And wine is safe, no matter how many times you hear the myth about how the barrels are sealed.

Welcome to our community. :)

psawyer Proficient

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html

A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link This makes shopping MUCH easier.

FDA foods are required to list wheat - it cannot be hidden.

Rule #1: Never eat anything without reading the label first.

Rule #2: Consistently check labels, even of your favorite products, as product formulations can change.

Rule #3: If you are unsure of an ingredient, or the company's policy on labeling, call the phone number on the back of the product or email the company.

Hope this helps.

kareng Grand Master

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

This is all very well & Good but there is still a wheat stalk on my license plate!

gluten free overseas Apprentice

SERIOUSLY??!!! I've been avoiding tea from teabags for NOTHING???

This was a very good thread--the previous info I read (new to the gluten free diet) was outdated, apparently.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yup Apprentice

To help you with recipes google Stephanie O'Dea. She made one gluten-free recipe for 365 days while using her crockpot.

Paula

psawyer Proficient

This is all very well & Good but there is still a wheat stalk on my license plate!

Okay, DO NOT eat your license plate. There are much better dietary sources of iron. :blink:

love2travel Mentor

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

If it makes you feel any better license plates in Saskatchewan still sport several stalks of wheat!

  • 2 weeks later...
Langenke Newbie

Welcome to our community!

I have joined a few of these support groups online, and it helps you feel not so alone. I drink mostly tea, water, nut milk, and clear sodas. All sodas should be fine however. Just some advice I wish so badly someone would have told me when I was first diagnosed.....get a really good fiber supplement. I get the kind that is fruit flavored and chewable. It is actually a nice treat everyday for me. Celiacs do not get the recommended amount of fiber as a result of our diet usually (No wheat, rye, oats, barley etc). The lack of fiber landed me in the hospital with an intestinal blockage about a year ago a few months after being diagnosed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,251
    • Most Online (within 30 mins)
      7,748

    Kathlane
    Newest Member
    Kathlane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.