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chrisnchris

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chrisnchris Newbie
chrisnchris
Posted

I have been gluten free for a little over a year. Recently I have been having more "attacks" then usual and don't know exactly what to do for the pain? I try hot baths, heat, pain killers and nothing helps. I need advice because it is getting embaressing now because it is happening at work, then I have to leave work (making more then one stop on the way home) and then miss a day and don't know what to do ,I am becoming tired and annoyed, I had one doctor try to put me on glutens again just to retest me. I need help!! I am getting angry and mad and I just want to scream , I know thats not the answer. Does anyone out there have any advice.

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IrishHeart Veteran
IrishHeart
Posted

I have been gluten free for a little over a year. Recently I have been having more "attacks" then usual and don't know exactly what to do for the pain? I try hot baths, heat, pain killers and nothing helps. I need advice because it is getting embaressing now because it is happening at work, then I have to leave work (making more then one stop on the way home) and then miss a day and don't know what to do ,I am becoming tired and annoyed, I had one doctor try to put me on glutens again just to retest me. I need help!! I am getting angry and mad and I just want to scream , I know thats not the answer. Does anyone out there have any advice.

Why on earth would a doctor have you ingest gluten???? :blink: What purpose would that serve? I hope you do not consider this!

What may be provoking your "attacks"? You may need to give us a bit more info. I assume you mean bowel issues and abdominal pain?

Are you being glutened somehow? Are you ill?

kareng Grand Master
kareng
Posted

What sort of " attacks"? Could it be your gall bladder? Appendix? Ulcer? Menstrual issues if applicable?

ravenwoodglass Mentor
ravenwoodglass
Posted

Is there anything that changed before the attacks started to happen? A new script med or a refill of a generic? A new supplement, toiletries, has something in your diet changed like going to more restaurants or eating more processed foods? Are you doing home remodeling that includes wall paper application or removal or drywall work? A new hobby that uses glues or pastes? A new significant other who eats gluten?(they need to brush their teeth before any kissing) A job change into someplace that uses flour or other gluten substances?

Harpgirl Explorer
Harpgirl
Posted

A new significant other who eats gluten?(they need to brush their teeth before any kissing)

Oh wow! I never thought of that! My husband will definitely be brushing his teeth more often! lol

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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