Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Need An Outlet..no Reply Required!


Di2011

Recommended Posts

Di2011 Enthusiast

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mummyto3 Contributor

My daugther was diagnosed last week as celiac disease. She's 9. My husband and I have had our bloods done today. Still trying to decide about my two boys. My family history upsets me too when I talk about it. I have an aunt with IBS, and uncle who died a few years back who had years of problems with his bowels (to point of removing colon), my grandmother lost her fight to colon cancer when I was 5, and my cousin had bowel problems which took her life aged 21. My daughters bowel problems came around Dec last year. I mentioned to doctor after doctor of my family history but no one listened. Then we met a lovely gastro not too long ago who immediately ordered blood tests for my daugher incl. for celiac disease. Thank God for her is all I can say.

Chin up. I know exactly how difficult this is. I'm sure we can all sympathise and empathise with you xxx

Harpgirl Explorer

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.

I really feel for you! I'm in the same boat, though as far as I can tell my boys seem to be okay so far. I'm impatiently waiting for my blood test results because while I know I'm going to stay away from gluten anyway because it makes me feel better, my husband has a very practical and "scientific" mindset. It would make this adjustment a lot easier if the blood test came back positive for celiac. Right now, I don't think he doubts I have it, but I think he thinks I'm a bit of a hypochondriac. :rolleyes:

JaniceS Newbie

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.

I know just how you feel. I'm currently in the waiting stage. I really would like to try a gluten-free diet, but was told not to because it can mess with my test results. I don't want to be sick either, but right now I really need answers, so really any hope of telling me what is making me feel terrible all the time. Hang in there. I know lots of people are probably going through similiar things right now too. I'm just thankful I found this site too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.