Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahhh...a Few Questions


glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast

Hi, so thought I would post a few questioned I am struggling with all in one post, hope that is ok....

So these questions are things I am experiencing and wondering if they are celiac related or something else I need to investigate into.

I have gluten-free fo 6months now but I know I have been cc more than a few times while I am trying to figure is all out....

Do grains even gluten-free seem to bother most? I seem to bloat and get C from them.

No gluten-free processed food seems to sit well with me..

Seem more sensitive to more foods now than pre celiac? Why? I thought I was supposed to be getting better not worse in different ways.

And the sadness I feel every time I go nto the grocery store or just thinking about food now is overwhelming it is like I am in a "depressed" state over food and eating is that normal? and is yes will it go away or how can I get over that? I want to feel happy and optimistic about my new foods and eating plan..not that I know what that is as I think I have finally figured out what is working then bamb something new food seems to bother me!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreegirl Enthusiast

Oh and also is anyone following a plan that they would recommend that is working for them....I have read a ton of books with all kinds of different opinions I don't even know where to start, I would love to know if any of you have had success or garbage on them.....rosedal diet, blood type diet, eat to live, specific carb diet, candida diet, the blended everything before you eat it plan, I am also so open to hearing if something not listed here has worked wonders for you...I have 2 children and a fabulous husband and after 4 yrs of unsettledness and fatigue etc I am so ready to just feel better....

Salax Contributor

If you think all grains might be problem, the Paleo diet would be good to try for a bit to let the system heal. Then maybe after awhile if you want to eat grains again you could try re-introducing them one at a time to see how you handle it. :)

luvs2eat Collaborator

When I was diagnosed almost 10 years ago, there simply weren't a lot of junk/processed food options, so I never had any to have problems from. The more I see of the processed stuff, the gladder I am that I've stayed clear of it. I like to cook and to bake (altho not as much as I used to) and will go out of my way to cook/bake GOOD things without all the crap.

I've never had much of a problem w/ grains... except for the fact that I'm a total carb addict and would rather eat rice and stuff like that more than any fruit or veggie! I've never suffered from C either... I'm D all the way (ha).

As for the grocery store depression? I've cried in grocery stores before... now I know how my kids felt when I used to tell them they could pick any cereal they wanted as long as it had 3 grams of sugar or less... and they'd pick up the Lucky Charms hoping that maybe THIS ONE TIME, it would have 3 grams of sugar instead of 30!! I've picked up things that I KNOW aren't gluten free and read the ingredients to see if maybe this ONE TIME, I'll get lucky.

glutenfreegirl Enthusiast

As for the grocery store depression? I've cried in grocery stores before... now I know how my kids felt when I used to tell them they could pick any cereal they wanted as long as it had 3 grams of sugar or less... and they'd pick up the Lucky Charms hoping that maybe THIS ONE TIME, it would have 3 grams of sugar instead of 30!! I've picked up things that I KNOW aren't gluten free and read the ingredients to see if maybe this ONE TIME, I'll get lucky.

Harpgirl Explorer

Yesterday I almost screamed in frustration when the trail mix I thought I could buy listed wheat as an ingredient. :angry:

viviendoparajesus Apprentice

i think grains are tough while still healing. there is also the issue of is a product truly gluten-free if not there is still the exposure of some gluten and if many products contain gluten then it adds up. another issue is if you have cross reactivity to the grains in which case to your body it might as well be gluten because it will act in the same way. digestive enzymes have helped me with avoiding constipation. along with plenty of fiber and water.

i also noticed i felt better on a diet that was mostly vegetables, with some fruit, beans, nuts, seeds, meat, and fish but limited grain and processed foods. it may be good to avoid the gluten-free foods at least till you have time to heal. another challenge is with gluten-free products having multiple ingredients it is hard to know which ingredient you are reacting to.

i also seem to be doing better in some areas and worse in others since going gluten-free. i think healing takes time. i also think that since gluten intolerance/celiac's causes such major problems it could be masking other issues and it can cause gi damage which can make other problems more likely - developing food intolerances, immune system wasting its time on things that are not threats, body attacking itself.

i still think about food a lot. i still feel depressed at times. i do not miss wheat for me i miss cheese and nightshades. i am excited though that i can better digest vegetables which i used to like until i could not digest them so i am happy about that. i never liked milk so i love having almond milk. i also liked and had fruit and i can keep having it. i also like nuts so i can still have them. i discovered i like beans and seeds. i still have low points sometimes but i try focus on what i do not want to go back to and what i can have. i lost symptoms and gained better health and i think i will be able to avoid many of the severe health problems that go back generations in my family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.