Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Sunny Devon

jo--ann

Recommended Posts

jo--ann Newbie
jo--ann
Posted

hello, I'm new to this forum and relatively new to ceoliac. I was diagnosed by endoscopy in April, so just working out whats what and trying to get through the minefield. Hopefully this forum will help guide me through it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Welcome! Where is Sunny Devon? Its been cloudy alot here in Kansas lately.

jo--ann Newbie
jo--ann
Posted
  • Author

Welcome! Where is Sunny Devon? Its been cloudy alot here in Kansas lately.

South-west England, just above Cornwall!

GFinDC Veteran
GFinDC
Posted

Welcome to the site Jo-Ann! Sunny Devon sounds like a fine place to be from! :)

Mummyto3 Contributor
Mummyto3
Posted

Hi,

I'm in not so sunny Cambridgeshire (UK). I'm relatively new here too. My daughter was diagnosed with celiac disease a few weeks ago and I was tested last week. I'm sure I have it too with all my symptoms and family history.

Hope you enjoy it here as much as I am. Lots of great, helpful people :D

navigator Apprentice
navigator
Posted

You're lucky if it's sunny Devon - raining all day here in Lanark. I was diagnosed on 6th May and have found this forum to be a godsend. Have you also joined coeliac uk?

jo--ann Newbie
jo--ann
Posted
  • Author

You're lucky if it's sunny Devon - raining all day here in Lanark. I was diagnosed on 6th May and have found this forum to be a godsend. Have you also joined coeliac uk?

Hi, actually rainy and cloudy here all day too, I just like to make out its always sunny!!! Yes I've joined Coeliac Uk, which I've found quite useful, especially the little food and drink book. Everything seems so complicated though, just got my first prescription of gluten-free food, not sure I can face that amount of hassle every month! I'll stick around this forum and see if it helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


navigator Apprentice
navigator
Posted

It does get easier. I made mistakes at the start with things like soya sauce and Lee & Perrins. I foolishly just never thought to check those although I read the ingredients of all 'foodstuff'. I don't have a problem cooking at home and my favourite local restaurant has been great since I told them. The chef tells me what I can have and offers to makes me alternative sauces and salad dressings. It's lunchtime out of home which I find the most difficult. There'a a microwave at work but it's disgusting and I would definately get cross- contamination. I tend to make up salads and eat them straight from my container. Although jacket potato would be a good lunch I'm wary of buying that from take away places in case of cross-contamination.

This forum really helped me and I think that just reading it and getting as much information as possible eventually makes it easier to deal with being coeliac.

My G.P. asked me to go back on gluten for six weeks and I only lasted four days as I felt so bad. The upside to that is that I'm no longer gazing longingly at fresh bread etc as now you couldn't pay me to eat it!! The last 2 days are the best I've felt in a long time and that makes being gluten free no longer a chore!!

Hope you find it easier soon.

Willowmeadow Newbie
Willowmeadow
Posted

Hi I am also from Devon, not far from Torquay.

Just had bloods done and waiting for results but seems certain I have it.

jo--ann Newbie
jo--ann
Posted
  • Author

Hi I am also from Devon, not far from Torquay.

Just had bloods done and waiting for results but seems certain I have it.

I'm just outside Torquay! Good luck with blood tests, if you get referred to Torbay hospital they're very good

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.