Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New


Willowmeadow

Recommended Posts

Willowmeadow Newbie

Feeling quite low and unasure at present as do not know where to begin or what to eat. I have only just had my blood tests and it be 2 weeks before I get the results but all of what I have read on here is like seeing myself which makes me even more sure I have it. Since childhood I have had problems and since my teens a bloated tummy so when I stop to think how long I must have had this and no one was aware it makes me so mad. Any advice on where I go from here and how I cope be much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

Hi and welcome! Be sure to poke around and read threads. The search engine is great, and everyone is always more than happy to help answer questions that you might have.

In the case that your blood tests are positive, did your doctor say that he'll want to do a biopsy? If he does, you'll need to keep eating gluten until then (which will give you time to wrap your head around things and prepare). Some doctors will diagnose via blood test alone. If that's the case, you can start the diet right away. And even if it's negative (which you could have a false negative reading or be gluten intolerant), you should try the diet anyway and see if it helps. Couldn't hurt to try! :)

There's also a thread on here titled something like Your Top Two Pieces of Advice that you might want to do a search for.

Again, welcome to our community!

Willowmeadow Newbie

He took bloods and never told me anything else about it apart from stop eating gluten straight away. Am lost by it all to be honest and do not understand much about it yet.

Thank you for your welcome and reply.

Harpgirl Explorer

Hi, I'm new here too (well relatively speaking :) ) I won't get my blood test back until 7/7. I went gluten free as soon as my blood was drawn. I found that the best way to cope with it is to educate yourself. This site is a great place to start. Ask questions, get opinions, etc. I'm also reading Living Gluten-Free for Dummies by Danna Korn. It's plain, non-technical jargon helps me to understand why my body reacts to gluten (whether I truly have celiac or not).

Welcome and best wishes to you! :D

cahill Collaborator

Hi :D Welcome to the forums.

notme Experienced

hello and welcome :) if your doctors are anything like mine, they don't know half as much as the people on this board do. my gp knew what celiac is but his nurse practitioner is clueless. my gi is good, but when i mentioned skipping dairy and soy for awhile, she told me i didn't need to go nuts with the diet. well. i *do* have to go nuts with it if i want to heal and feel well!!! poke around this forum because they can usually give you ideas if things are perplexing you - i am still tweaking my diet and figuring out what is messing up my body and i am almost a year gluten free. lol - yesterday i gave up fresh peaches just because i am not digesting them very well even though they are naturally gluten free. although i may be able to eat canned peaches. experiment, experiment..... the only thing i don't test out on myself is gluten.

start out eating plain foods. skip the dairy for awhile because the stuff that you need to digest lactose is produced by your villi and until your poor little villis heal, dairy will not be digested and it'll slow your healing. replace any porous cooking equipment: wooden spoons, plastic containers, cutting boards. check your toiletries: soaps, shampoos, etc anything that you use from the neck up :) and watch out when kissing your s.o,! good bread is udi's if you can get it. good pasta is tinkyada..... check all your ingredients/read the labels every single time!! even if you buy the same exact brand... there is a safe/unsafe list on this site... ummmm..... others will have very useful advice. we all know how you feel and this site is a gift from God. don't hesitate to post specific questions. we are all beyond embarrassment lol - i was lost until i found all these great people who knew exactly what i was going through! nobody else really does haha not even most doctors.

kellynolan82 Explorer

Welcome! And I hope that you too can gain what I have from this board :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    3. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    4. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748

    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
    • FannyRD
      Thanks for the resource! I will check it out!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.