Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New

Willowmeadow

Recommended Posts

Willowmeadow Newbie
Willowmeadow
Posted

Feeling quite low and unasure at present as do not know where to begin or what to eat. I have only just had my blood tests and it be 2 weeks before I get the results but all of what I have read on here is like seeing myself which makes me even more sure I have it. Since childhood I have had problems and since my teens a bloated tummy so when I stop to think how long I must have had this and no one was aware it makes me so mad. Any advice on where I go from here and how I cope be much appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WinterSong Community Regular
WinterSong
Posted

Hi and welcome! Be sure to poke around and read threads. The search engine is great, and everyone is always more than happy to help answer questions that you might have.

In the case that your blood tests are positive, did your doctor say that he'll want to do a biopsy? If he does, you'll need to keep eating gluten until then (which will give you time to wrap your head around things and prepare). Some doctors will diagnose via blood test alone. If that's the case, you can start the diet right away. And even if it's negative (which you could have a false negative reading or be gluten intolerant), you should try the diet anyway and see if it helps. Couldn't hurt to try! :)

There's also a thread on here titled something like Your Top Two Pieces of Advice that you might want to do a search for.

Again, welcome to our community!

Willowmeadow Newbie
Willowmeadow
Posted
  • Author

He took bloods and never told me anything else about it apart from stop eating gluten straight away. Am lost by it all to be honest and do not understand much about it yet.

Thank you for your welcome and reply.

Harpgirl Explorer
Harpgirl
Posted

Hi, I'm new here too (well relatively speaking :) ) I won't get my blood test back until 7/7. I went gluten free as soon as my blood was drawn. I found that the best way to cope with it is to educate yourself. This site is a great place to start. Ask questions, get opinions, etc. I'm also reading Living Gluten-Free for Dummies by Danna Korn. It's plain, non-technical jargon helps me to understand why my body reacts to gluten (whether I truly have celiac or not).

Welcome and best wishes to you! :D

cahill Collaborator
cahill
Posted

Hi :D Welcome to the forums.

notme Experienced
notme
Posted

hello and welcome :) if your doctors are anything like mine, they don't know half as much as the people on this board do. my gp knew what celiac is but his nurse practitioner is clueless. my gi is good, but when i mentioned skipping dairy and soy for awhile, she told me i didn't need to go nuts with the diet. well. i *do* have to go nuts with it if i want to heal and feel well!!! poke around this forum because they can usually give you ideas if things are perplexing you - i am still tweaking my diet and figuring out what is messing up my body and i am almost a year gluten free. lol - yesterday i gave up fresh peaches just because i am not digesting them very well even though they are naturally gluten free. although i may be able to eat canned peaches. experiment, experiment..... the only thing i don't test out on myself is gluten.

start out eating plain foods. skip the dairy for awhile because the stuff that you need to digest lactose is produced by your villi and until your poor little villis heal, dairy will not be digested and it'll slow your healing. replace any porous cooking equipment: wooden spoons, plastic containers, cutting boards. check your toiletries: soaps, shampoos, etc anything that you use from the neck up :) and watch out when kissing your s.o,! good bread is udi's if you can get it. good pasta is tinkyada..... check all your ingredients/read the labels every single time!! even if you buy the same exact brand... there is a safe/unsafe list on this site... ummmm..... others will have very useful advice. we all know how you feel and this site is a gift from God. don't hesitate to post specific questions. we are all beyond embarrassment lol - i was lost until i found all these great people who knew exactly what i was going through! nobody else really does haha not even most doctors.

kellynolan82 Explorer
kellynolan82
Posted

Welcome! And I hope that you too can gain what I have from this board :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.