Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New


Willowmeadow

Recommended Posts

Willowmeadow Newbie

Feeling quite low and unasure at present as do not know where to begin or what to eat. I have only just had my blood tests and it be 2 weeks before I get the results but all of what I have read on here is like seeing myself which makes me even more sure I have it. Since childhood I have had problems and since my teens a bloated tummy so when I stop to think how long I must have had this and no one was aware it makes me so mad. Any advice on where I go from here and how I cope be much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

Hi and welcome! Be sure to poke around and read threads. The search engine is great, and everyone is always more than happy to help answer questions that you might have.

In the case that your blood tests are positive, did your doctor say that he'll want to do a biopsy? If he does, you'll need to keep eating gluten until then (which will give you time to wrap your head around things and prepare). Some doctors will diagnose via blood test alone. If that's the case, you can start the diet right away. And even if it's negative (which you could have a false negative reading or be gluten intolerant), you should try the diet anyway and see if it helps. Couldn't hurt to try! :)

There's also a thread on here titled something like Your Top Two Pieces of Advice that you might want to do a search for.

Again, welcome to our community!

Willowmeadow Newbie

He took bloods and never told me anything else about it apart from stop eating gluten straight away. Am lost by it all to be honest and do not understand much about it yet.

Thank you for your welcome and reply.

Harpgirl Explorer

Hi, I'm new here too (well relatively speaking :) ) I won't get my blood test back until 7/7. I went gluten free as soon as my blood was drawn. I found that the best way to cope with it is to educate yourself. This site is a great place to start. Ask questions, get opinions, etc. I'm also reading Living Gluten-Free for Dummies by Danna Korn. It's plain, non-technical jargon helps me to understand why my body reacts to gluten (whether I truly have celiac or not).

Welcome and best wishes to you! :D

cahill Collaborator

Hi :D Welcome to the forums.

notme Experienced

hello and welcome :) if your doctors are anything like mine, they don't know half as much as the people on this board do. my gp knew what celiac is but his nurse practitioner is clueless. my gi is good, but when i mentioned skipping dairy and soy for awhile, she told me i didn't need to go nuts with the diet. well. i *do* have to go nuts with it if i want to heal and feel well!!! poke around this forum because they can usually give you ideas if things are perplexing you - i am still tweaking my diet and figuring out what is messing up my body and i am almost a year gluten free. lol - yesterday i gave up fresh peaches just because i am not digesting them very well even though they are naturally gluten free. although i may be able to eat canned peaches. experiment, experiment..... the only thing i don't test out on myself is gluten.

start out eating plain foods. skip the dairy for awhile because the stuff that you need to digest lactose is produced by your villi and until your poor little villis heal, dairy will not be digested and it'll slow your healing. replace any porous cooking equipment: wooden spoons, plastic containers, cutting boards. check your toiletries: soaps, shampoos, etc anything that you use from the neck up :) and watch out when kissing your s.o,! good bread is udi's if you can get it. good pasta is tinkyada..... check all your ingredients/read the labels every single time!! even if you buy the same exact brand... there is a safe/unsafe list on this site... ummmm..... others will have very useful advice. we all know how you feel and this site is a gift from God. don't hesitate to post specific questions. we are all beyond embarrassment lol - i was lost until i found all these great people who knew exactly what i was going through! nobody else really does haha not even most doctors.

kellynolan82 Explorer

Welcome! And I hope that you too can gain what I have from this board :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,820
    • Most Online (within 30 mins)
      7,748

    Mariella Chapellin
    Newest Member
    Mariella Chapellin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
    • lookingforanswersone
      Hi, just looked and it doesn't list that. Says : Tissue Transglutaminase (IgA)  0.30 (results - negative) U/ml (Units ) Reference range 0.00 - 10.00
    • Suze046
      Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.
×
×
  • Create New...