Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New


Willowmeadow

Recommended Posts

Willowmeadow Newbie

Feeling quite low and unasure at present as do not know where to begin or what to eat. I have only just had my blood tests and it be 2 weeks before I get the results but all of what I have read on here is like seeing myself which makes me even more sure I have it. Since childhood I have had problems and since my teens a bloated tummy so when I stop to think how long I must have had this and no one was aware it makes me so mad. Any advice on where I go from here and how I cope be much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

Hi and welcome! Be sure to poke around and read threads. The search engine is great, and everyone is always more than happy to help answer questions that you might have.

In the case that your blood tests are positive, did your doctor say that he'll want to do a biopsy? If he does, you'll need to keep eating gluten until then (which will give you time to wrap your head around things and prepare). Some doctors will diagnose via blood test alone. If that's the case, you can start the diet right away. And even if it's negative (which you could have a false negative reading or be gluten intolerant), you should try the diet anyway and see if it helps. Couldn't hurt to try! :)

There's also a thread on here titled something like Your Top Two Pieces of Advice that you might want to do a search for.

Again, welcome to our community!

Willowmeadow Newbie

He took bloods and never told me anything else about it apart from stop eating gluten straight away. Am lost by it all to be honest and do not understand much about it yet.

Thank you for your welcome and reply.

Harpgirl Explorer

Hi, I'm new here too (well relatively speaking :) ) I won't get my blood test back until 7/7. I went gluten free as soon as my blood was drawn. I found that the best way to cope with it is to educate yourself. This site is a great place to start. Ask questions, get opinions, etc. I'm also reading Living Gluten-Free for Dummies by Danna Korn. It's plain, non-technical jargon helps me to understand why my body reacts to gluten (whether I truly have celiac or not).

Welcome and best wishes to you! :D

cahill Collaborator

Hi :D Welcome to the forums.

notme Experienced

hello and welcome :) if your doctors are anything like mine, they don't know half as much as the people on this board do. my gp knew what celiac is but his nurse practitioner is clueless. my gi is good, but when i mentioned skipping dairy and soy for awhile, she told me i didn't need to go nuts with the diet. well. i *do* have to go nuts with it if i want to heal and feel well!!! poke around this forum because they can usually give you ideas if things are perplexing you - i am still tweaking my diet and figuring out what is messing up my body and i am almost a year gluten free. lol - yesterday i gave up fresh peaches just because i am not digesting them very well even though they are naturally gluten free. although i may be able to eat canned peaches. experiment, experiment..... the only thing i don't test out on myself is gluten.

start out eating plain foods. skip the dairy for awhile because the stuff that you need to digest lactose is produced by your villi and until your poor little villis heal, dairy will not be digested and it'll slow your healing. replace any porous cooking equipment: wooden spoons, plastic containers, cutting boards. check your toiletries: soaps, shampoos, etc anything that you use from the neck up :) and watch out when kissing your s.o,! good bread is udi's if you can get it. good pasta is tinkyada..... check all your ingredients/read the labels every single time!! even if you buy the same exact brand... there is a safe/unsafe list on this site... ummmm..... others will have very useful advice. we all know how you feel and this site is a gift from God. don't hesitate to post specific questions. we are all beyond embarrassment lol - i was lost until i found all these great people who knew exactly what i was going through! nobody else really does haha not even most doctors.

kellynolan82 Explorer

Welcome! And I hope that you too can gain what I have from this board :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.