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Gluten Sensitive Or Celiac?

momna

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momna Newbie
momna
Posted

HI, I have been tested for gluten sensitivity via blood test and it came positive. So immediately after the Doctor said I should avoid gluten I removed it from my diet. Then my Doctor scheduled me for an endoscopy two weeks after that. Tests came negative for celiac as she only check my right side ( where I was complaining a twinging pain to right side every after meal). Does this mean I have gluten sensitivity only and not celiac disease? thanks for your insights.

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Mari Enthusiast
Mari
Posted

It would be helpful if you posted your test results, just get a copy from your Dr.

A positive test shows that you have elevated autoimmune antibodies so you are sensitive to gluten. Since the small intestine is 28 ft. long it's very likely the biopsy missed the area that was damaged. Even the multiple biopsies will miss damaged areas. If you are still uncertain you could order the DNA test from one of the online labs or have your Dr order the molecular serology test. You do not have to eat gluten foods for these tests.

Skylark Collaborator
Skylark
Posted

HI, I have been tested for gluten sensitivity via blood test and it came positive. So immediately after the Doctor said I should avoid gluten I removed it from my diet. Then my Doctor scheduled me for an endoscopy two weeks after that. Tests came negative for celiac as she only check my right side ( where I was complaining a twinging pain to right side every after meal). Does this mean I have gluten sensitivity only and not celiac disease? thanks for your insights.

Gluten sensitivity and celiac are a disease spectrum, not separate diseases. You are somewhere in the middle, past gluten sensitivity but not full blown celiac. If I were you, I would continue with a strict gluten-free diet as people with positive blood tests can move on to develop villous atrophy.

momna Newbie
momna
Posted
  • Author

HI thanks for the replies...

here are my test results:

Nuclear AB,ser,ql NEGATIVE

Component Your result Standard range Units

TISSUE TRANSGLUTAMINASE IgG 0.98 <0.90 -

Tissue transglutaminase IgA 0.30 <0.90 -

thanks again!

Skylark Collaborator
Skylark
Posted

So you have positive TTG. If you feel better gluten-free you are almost certainly celiac. TTG is an autoimmune antibody; simple gluten sensitivity won't cause it to appear. It's hard to get positive on both blood and biopsy. Damage can be patchy and they have to take a lot of biopsies to find the damage reliably.

momna Newbie
momna
Posted
  • Author

So you have positive TTG. If you feel better gluten-free you are almost certainly celiac. TTG is an autoimmune antibody; simple gluten sensitivity won't cause it to appear. It's hard to get positive on both blood and biopsy. Damage can be patchy and they have to take a lot of biopsies to find the damage reliably.

Thank you so much for the information. I guess I really have to be in the gluten free diet more than ever. I wanted to give it a try for three months since I got an inconclusive diagnosis. But after reading so many things about it ( and your reply) I am convinced. I have been off gluten for more than a month ( except for some occasional slip ups )and I felt good, no more twinging tummy ache after I eat, no more feeling sleepy after every meal and I feel energized and wanting more exercise. Plus My husband and I have been trying for baby 2 for two years of infertility treatments which included injectibles and IUI but nothing happened. I've no problem with egg production and all but I just couldnt get pregnant and the hubby's stat is fine so it's just me. I read somewhere that Celiac disease can cause infertility as well..

the more I think of what has happened to me it all adds up to Celiac. I;ve got Vitamin D/B1-6-12 deficiency, anemia. Again, thanks for the insight.

Mummyto3 Contributor
Mummyto3
Posted

When my daughters blood was pos we were told to keep her on gluten until the biopsy. Perhaps thats why you biopsy was neg because you were already gluten free and also your dr only took samples from one area, so damaged areas were missed.

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Skylark Collaborator
Skylark
Posted

There's a lot of women on the board who have conceived after going gluten-free. Good luck!!!

momna Newbie
momna
Posted
  • Author

When my daughters blood was pos we were told to keep her on gluten until the biopsy. Perhaps thats why you biopsy was neg because you were already gluten free and also your dr only took samples from one area, so damaged areas were missed.

I am thinking the same thing that's why it was negative.. Since I have to do a repeat biopsy every year now, I'll probably go on the gluten diet months before the biopsy. If I can take it!

momna Newbie
momna
Posted
  • Author

There's a lot of women on the board who have conceived after going gluten-free. Good luck!!!

Thanks a lot! I am keeping my fingers crossed!!

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      how much gluten do I need to eat before blood tests?

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      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
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