Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Test My 6 Year Old


mamabear272

Recommended Posts

mamabear272 Explorer

I was just diagnosed 3 weeks ago and want to have my children tested. My two older kids are 19 and 18 and are fine with it. My 6 year old on the other hand threw the biggest fit. I mean kicking, screaming, flailing and everything. I swear I thought that Satan had taken over my baby! :blink: He is asymptomatic for now but I'd really like to know if he has it or not so that if he does I want to get him healing ASAP! Any advice out there to get him to sit for a blood test or should I just let it go for now and maybe try in a year or two?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stanleymonkey Explorer

my 2 yr old hates blood tests and usually is pinned down! He may not like the idea, but he'll forget about the test after a while, my daughter gets a small gift afterwards.

he's 6 so he has a good understanding of things. explain that some foods might be hurting his insides, and he might not feel ill now, but he might in the future, and the blood tests will help his doctor work things out.

tell him you dont want him to get sick so would like him to be really brave for a few seconds while they take blood. bribery usually works!!!! even see if he can accompany your older kids to get blood drawn, and get them to make a big deal out of how painless it is.

come dance with me Enthusiast

When I had my 7yo tested I had to sit on the chair with her and have my legs over hers then one arm pinning her arm to her chest to hold her in a way that she wasn't able to throw herself forward and also so she wasn't able to use that arm to attack the nurse with my other arm holding her hand on the arm where the blood was taken from so I could hold her down on the arm of the chair so she couldn't pull away. Oh she screamed! They called in another nurse help out as well so it took 3 of us to hold her an take blood from her. Then she kept screaming even after it was done and cried every time she looked at her arm for the next 24 hours. I never thought to check for it but the new Paediatrician thought she might have it so I tested her for it and yep the Paed is definitely smart! I was tested but don't have it. I want my parents tested now but so far haven't been able to have them checked. My brother's have been. One brother has a brand new baby so I want to know if it's in my side (I have no contact with her father or that part of her family) so they can watch him because I feel terrible about the amount of damage I did to my baby by not knowing she has it. All that bread and cereal and everything else made her sick :(

mamabear272 Explorer

He watched my older son get his done and he even told the 6 yo that it didn't hurt. And I tried telling hims that we wanted to make sure he's not sick. Bit since he doesn't feel sick he was like "but I'm not sick!" I don't know how to argue with his logic. Lol

Mummyto3 Contributor

I was after this advice as I posted lol I'm going to get my 7 and 3 yr old tested but am also worried how they'll be with the blood test.

Jungle Rookie

I spent about a week talking to my 8 and 6 year old before we went. Explaining why, and what it would feel like and that it would only pinch for a minute and then we'd go get a treat. I was not excited about testing my almost 3 year old because she is big and very strong. I decided to wait until she was a bit older so she would understand what we were doing. In the end about 2 weeks after I had the big girls tested with no real problems, my youngest needed blood draw for other reasons so I took a deep breath and took her up to be tested.

My almost 3 year old did amazing. She just sat their and watched and squeezed my hand when they were poking her. I was so shocked. Most adults cause more fuss than she did. So I guess you never know.

A tip from a friend.....there is a numbing cream they can put on the site but it takes about 30 minutes to work.

mamabear272 Explorer

I think I'm going to call my doctor on Monday and see what he suggests. Maybe there's something he can give him for it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



October3 Explorer

I think I'm going to call my doctor on Monday and see what he suggests. Maybe there's something he can give him for it.

Ask for EMLA cream. If you put it on his arm with a bandage on it for 30 min before the blood draw he shouldn't feel anything (its a numbing agent). I usually put it on both arms so the phlebotomist can make the decision which to use. If you tell him the cream will make it not hurt hopefully he'll be more willing. Then just cross your fingers that it works. ;)

mamabear272 Explorer

Thanks October!!

stanleymonkey Explorer

make sure a nurse or blood tech i forget what they are called phlebologist i think, draws the blood, docs are useless at blood draws!!!!!!!!!!

mamabear272 Explorer

They don't do them in the office. There's a lab downstairs from the office so we're good there. Plus the doc doesn't do any poking anyway. That way the kids don't relate pain to the doc.

stanleymonkey Explorer

They don't do them in the office. There's a lab downstairs from the office so we're good there. Plus the doc doesn't do any poking anyway. That way the kids don't relate pain to the doc.

thats good our family doc wont even give flu shots to kids for the same reason..just remember a few seconds of pain, a few hours of complaining, for a lifetime of good health is worth it

mamabear272 Explorer

Oh I know that. There was no way the test was happening though the way he was flailing around. My brother works on medical and is bringing me some of the emla cream and we're going to get the test tomorrow.

stanleymonkey Explorer

Oh I know that. There was no way the test was happening though the way he was flailing around. My brother works on medical and is bringing me some of the emla cream and we're going to get the test tomorrow.

good luck, i've got my fingers and toes crossed hoping it is a breeze for your son (and poor mommy too)

mamabear272 Explorer

Didn't make it today cause I had so much to do. Tomorrow for sure.

Darn210 Enthusiast

Ask for EMLA cream. If you put it on his arm with a bandage on it for 30 min before the blood draw he shouldn't feel anything (its a numbing agent). I usually put it on both arms so the phlebotomist can make the decision which to use. If you tell him the cream will make it not hurt hopefully he'll be more willing. Then just cross your fingers that it works. ;)

Your pediatrician can prescribe this ahead of time so you can start the process at home and not have to wait in the lab waiting room. Also, I don't think the lab has it on hand (needs to be prescribed by a doctor). . . at least this is how it was in my son's case. Now, my son still did not do that well . . . try to get them to look at something other than the needle. Also, ask for a butterfly needle (they may be using one anyway) because it's a pretty small needle.

My son is now 12 and still does not do that well with blood draws or shots but the last time we went, we used an ice pack on his arm instead of the EMLA cream and he thought it was actually better than the cream.

Good Luck.

Mummyto3 Contributor

Our dr prescribed EMLA cream for my boys. I put it on them this morning for their blood test today. They didn't even flinch when blood was drawn. They did really well, so I would highly recommend it.

mamabear272 Explorer

My brother-in-law brought me some and we put it on both arms so he could choose when he got there. It was still an ordeal (I don't even want to go into detail, just know it involved me and 2 techs) but it got done and after the one tech told him the needle was already in he calmed down. He ended up being fine and all the testing got done. He's cool now cause he realized it didn't hurt. Hopefully, we get results soon and that he doesn't have it. I'm not as much worried about him having it as my 18 year old. He's more symptomatic in the GI dept and he also has headaches, depression, anxiety and Asperger's.

  • 3 weeks later...
mamabear272 Explorer

Good news! Neither of my sons tested positive! Praise the Lord! I know what a time I had adjusting. I'm glad they don't have to, too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,555
    • Most Online (within 30 mins)
      7,748

    JMF
    Newest Member
    JMF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.