Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wedding Invitation

adab8ca

By adab8ca
in Coping with Celiac Disease

Recommended Posts

adab8ca Enthusiast
adab8ca
Posted

So a kid of a close family friend is getting married in September...We have to go to the wedding. Will probably be sitting at least with my 2 sisters and their husbands so everyone is aware of the problem. I will just eat before hand, but you know what, this SUCKS. I have been gluten-free for 10 months, slipped up in March where I Licked A Spoon that I used to spread almond butter on an english muffin for my husband and had D and was sick for over 6 weeks. So I Do Not Eat Out. Period. At this time, if I didn't cook it, I won't eat it. And you know, that really, really sucks. But it is not worth the risk for the excruciating, excruciating (did I mention excruciating?) nerve pain and joint/bone pain...

Just sitting a teeny bit on the pity pot.

And, also realized my sister, that I THOUGHT understood gluten-free did not realize that Barley and Rye and possibly oats were a problem. So I have learned that I cannot trust anyone but myself. It is too bad when food becomes the enemy :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MariKate Newbie
MariKate
Posted

I know that social occasions can be really tricky. I have been Gluten Free for 7 years and I know where you are coming from. Eating something beforehand is a good idea - but I always carry some rice crackers with me just in case there may be something that I know I can eat. I am fortunate that extended family really tries to have some food items That are gluten free and will tell me all the ingredients and brands that went into something that they made. When it does not look too promising I head for the fruit and raw veggies (no Dip) also if there is cheese that I can eat that can bulk up your meal a little. (that is why I bring crackers) Give yourself time and you will start to accept these situations a bit better. I have had all the symptoms that you describe (but they came from a restaurant meal that "appeared" Gluten Free) and I know that it is no picnic.

Also there are some restaurants that will make gluten free for you in a special gluten free area - I know that the Cheesecake Factory in Cincinnati does for me so I assume that they all will and there is an Italian restaurant chain( Maggiano's Little Italy) that does gluten free - the chef even comes out and talks with you and you get a gluten free dessert on the house. Check out restaurants online to see if they have a gluten free menu and if they take care to prepare your food in a gluten free area. It does take time, but you will find a lot of resources and you will be amazed. Best of Luck

WhenDee Rookie
WhenDee
Posted

I'm sorry for your frustration, and for a difficult situation coming up. At first I remember thinking, "I'm not going to let Celiac change my life!" then getting sick over and over until I will hardly eat anything out. It isn't worth it!

People really want to be helpful and make you eat something, and search around for something you can eat, and it's hard to explain that all the fuss is much harder than if they just let you be and not eat. But how do you say, "please stop being so thoughtful!"?

My MIL is under restrictions because of diabetes, and I thought I sympathized with her situation. Everyone thinks they do. But now that I have restrictions of my own, I understand so much better now the frustration and the temptation to cheat. I'm the only person who truly knows, and it has helped me be more thoughtful of her situation. All your frustration will someday be helpful to you as you find you can help someone else.

)))hugs(((

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    2. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    4. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,258
    • Most Online (within 30 mins)
      7,748
    TracyMc
    Newest Member
    TracyMc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.