Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Anxiety


nik95670

Recommended Posts

nik95670 Rookie

I have been gluten free for four weeks & while the diet & diagnosis has it's challenges, I can honestly say I've never felt so good in my whole life. Increased energy, focus, mood stabilized & improved, and the god awful pain and stomach aches are GONE. I'm finding a major increase in anxiety though. I'm SO terrified that I'm just all of a sudden going to be sick again like before I went Gluten-Free. I don't know how to explain it but I feel like I SHOULD feel more confident eating, going out to social events, etc. but I think it just hasn't been long enough & I don't have the confidence. I'm still scares most days that I'm going to end up in the fetal position in pain & it prevents me from being totally happy. It almost seems too good to be true, that all I have to do is eat right & I can have such improved quality of life. After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?

Oh yeah, I've been there!

I first dealt with it by staying paranoid for months, LOL. Time was really the only cure for it, and for my fears that involved screwing up my good health again.

But looking back, I kind of see it as a lifestyle change rather like having a new baby. At first, you are scared to death about raising a child, screwing up, dropping the baby on its head, missing something that will hurt her, forgetting the baby in the car when you're exhausted, whatever.

But slowly, you get used to thinking of your child 24/7, and it becomes part of your daily life to listen for your kids, wonder what they're doing, think about what to say to them to keep 'em safe. The constant fear fades. But at the same time, it's not that the hyper-awareness goes away, it's just that you get used to it being a part of your normal life and the FEAR goes away.

That's pretty much what's happened to me, anyway. You won't be able to stop thinking of gluten all the time, not if you want to stay safe. But it becomes second nature after a few months.

As an example, I used to be a very oral person - I chewed on my nails all the time, popped things in my mouth to hold on to them when I was thinking(like pens and pencils), and so on. Now, the second I go out my front door, I don't do that. It took me weeks and weeks to get over that behavior, but getting sick from it was very motivating.

In other words: it'll happen. It'll become normal. Not normal for everyone else, maybe, but normal for you, so it's not so overwhelming all the time. You WILL get sick every once in a while. It's almost impossible to avoid. But you'll get over it this time, unlike all the times before in the past couple of decades.

And until it does become normal....lots of deep breaths, whatever relaxes you, lots of hugs from friends, and music, and enjoying the ever-loving heck out of your good health right now. :-)

pondy Contributor

I'm finding a major increase in anxiety though. I'm SO terrified that I'm just all of a sudden going to be sick again like before I went Gluten-Free. I don't know how to explain it but I feel like I SHOULD feel more confident eating, going out to social events, etc. but I think it just hasn't been long enough & I don't have the confidence. I'm still scares most days that I'm going to end up in the fetal position in pain & it prevents me from being totally happy. It almost seems too good to be true, that all I have to do is eat right & I can have such improved quality of life. After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.