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Gerd I Think It Is.


samie

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samie Contributor

I think my 3 yr old acid reflux has came back. She has been having a cough and nausea and then throws up. It seems to be happening at night or nap time. Also I sometimes hear here whining in her sleep. I guess she is hurting. She does complain about her tummy hurting alot to. She has not gone gluten-free yet because she got to get the scope on the 25. She used to have it when she was younger and then it went away. Also does anybody else had it go away when they went gluten-free.


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emaegf Newbie

Mine goes away and stays away as long as I avoid gluten and lactose if I get any amounts it returns and I have to take a Prilosec to stop it. You can try giving her an antacid to help lessen her pain but check with the doctor first for dosage and type. It won't affect the out come of the biopsy as long has she continues to eat gluten.

Roda Rising Star

My 6 year old had horrible reflux up until he was about 9 month old. After that he developed a bad rattling in his chest. At that point I believe he was having silent reflux. All of the reflux I know contributed to his breathing problems and as a result he was on pulmicort twice a day till he was three. At that point he didn't have any more breathing issues(and still doesn't). However when he started last June complaining of his belly hurting (he was 5.5 yrs old) he would complain he was having "puke burps" a lot. 5 months later I had his celiac panel redone and he showed up positive. The only time now he complains of either the belly ache or "puke burps" is when he gets accidently glutened.

For myself my main gi complaint was horrible reflux. It gradually got to the point that I couldn't sleep without sitting up at it's worst. I refused to go on meds because I didn't want to bandaid the problem. Unfortunately it took another 2 years after this to get diagnosed with celiac. I learned to deal with the reflux and I avoided things I "knew" would make it worse (didn't know about gluten). After I went gluten free, within a month my reflux was gone! Anytime I would get glutened by accident I could tell because my reflux would come back within 30 minutes to hours. Now my gluten reactions have changed. I get very mild reflux if I get any at all but I do bloat up within hours of being exposed. Then by two days later I have horrendous D and steatorrhea. I usually have to eat very simple and take creon during the week to two weeks it takes for me to get back to normal. I know this is bad to say, but I think the reflux was easier to deal with than my symptoms I get now from an accidental glutening. I guess this is why this disease is so darn weird.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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