Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd And Celiac Disease

Oukvekpwv

Recommended Posts

Oukvekpwv Newbie
Oukvekpwv
Posted

Hi, I'm new to the site and trying to figure stuff out. I apologise if the topic was already posted I'm sure it already has but I'm just mostly introducing myself and making conversation.

Over the past year or so I have lost 109lbs, almost to goal weight, have a few more to go. Around 6 months or so ago I was diagnosed by my doctor with GERD, it took a little bit to find a medicine that worked but after I found one it worked for the most part and I was alright. A few months into taking the medicine everyonce in a while I still have had a bad night. Most recently, this past week or so, my stomach has been negativly active in more ways than one. Something made me rethink why these things were happening or maybe think of that maybe a few things were happening at once. Something told me to look up Celiac Disease to see if the symptoms could be something that matched what I was going through. I don't know if it is just late night pain ridden delirium that I was thinking I might have Celiac Disease or not but some of the symptoms seemed to match some of the recent things that have been happening to me. I haven't seen a GI yet partially because I was afraid that GERD was still considered a pre-existing condition under my health insurance and wasn't sure if everything would be covered, and my doctor said it could wait if the medicine was working. But still feeling these things are a bit beyond my tolerance, and I fear that prolonged non-treatment would be dangerous. I plan to call to make an appointment with my doctor today to discuss what is happening and when I could get to see a GI.

I've read that to properly diagnose Celiac Disease it would be best to go about a normal diet, so I didn't make any changes yet. I guess I will see how it goes. It's hard for me to tell because I can't seem to pinpoint what foods are affecting me, some foods I can tell, but other times by body still reacts.

Is or has anyone gone through anything like that? or know much about the relationship between GERD and Celiac Disease?

thanks, Nice to meet everyone,

PS. Is there a way to make my contact info private on my profile, or is it already but I just see my info? I never knew of a forum that required info like that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

Oukvekpwv Newbie
Oukvekpwv
Posted
  • Author

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

oh cool alright, thanks :D

Jenniferxgfx Contributor
Jenniferxgfx
Posted

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Oukvekpwv Newbie
Oukvekpwv
Posted
  • Author

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Yea, Even the generic medicine can get a bit pricey.. at first I was worried about ulcers until I learned that long term non-treatment/reducing of symptoms can lead to cancer, and so could Celiac Disease I hear, so the cancer is a bigger deal to me. My grandmother and father had GERD I dont know if they had Celiac Disease. My grandmother died of cancer I'm assuming stemming from her GI issues but the cancer was found too late to worry about where it started.

I at times have that nausious gagging feeling. The worst is the horrible abdominal pain, its the worst most vivid pain I've ever experienced, is the pain the same for untreated Celiac Disease? I wonder.. Even if it turns out that I am negative I am still considering a diet change, gluten free possibly even vegan.. I've been eating healthier for a while now, its somewhat discouraging to think that its not healthy enough not to be in pain or intestinal discomfort.

mommida Enthusiast
mommida
Posted

You are right stay on a "normal" diet for testing.

There seems to be many links between Celiac and other disorders.

Some Celiacs who have started the gluten free diet have noticed that their GERD resolves.

You really didn't go into much detail about your symptoms but since you say Celiac fits them there are other disorders with these symptoms....

Hernia

H. Ployri

parasites

Eosinophilic Gastro. disorders (*gluten can be a "trigger" for these eosinophils*)

this is just a short list, but enough reason to go for further testing.

Good luck with testing and I hope you find answers for a speedy recovery!

beebs Enthusiast
beebs
Posted

I had extremely severe GERD for years...really bad and was medicated but still eating a packet of tums a day and still getting it all the time. It felt like a heart attack and caused Jaw pain. Anyhow - when I went Gluten free my GERD was gone within a day. No kidding. I have to have an endo to check for damage to the Esophagus, but it is amazing the difference.

You deffo need to get yourself into a GI though. If you have GERD there is a 20% chance of developing Barrett's Esophagus - which are precancerous cells - not something to muck about with..and if you can find whats causing it all the better. Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

I had very bad GERD. I went on prescription meds and after a while one would stop working and I'd go on another. It was real bad when I was eating gluten. It's the first symptom that settled down once I went gluten free.

I haven't been gluten free for long..just over two weeks. I'm hoping at some point I can go off medication?

redheadsmom Rookie
redheadsmom
Posted

I also suffer from GERD and have been every RX PPI out there over the last 7-8 years. I'm currently on Prevacid. I'm 1 week into being gluten free and so far I haven't noticed any difference but I'm also being treated for SIBO right now too so I'm hoping within the next few weeks I will start seeing some improvement with my GERD.

Jessica

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748
    Daffodil
    Newest Member
    Daffodil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.