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When Do Symptoms Subside?

Mamas3Bears

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Mamas3Bears Newbie
Mamas3Bears
Posted

Hello all. I'm a newbie, diagnosed in May with celiac disease after the blood tests and biopsy. My diagnosis came after 4 years of lots of issues (which I'm sure you hear all the time) but what finally got me to demand an answer was the horrific reflux and vomiting I started to experience about 6 months ago. Last month during a doctor visit he told me that once I go gluten-free my symptoms should subside pretty drastically within a month. Well, I spent the morning puking and running to the bathroom. I guess I'm just looking for some reassurance that it will, indeed, get better eventually.

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Jenniferxgfx Contributor
Jenniferxgfx
Posted

Are you getting gluten from anywhere non-food? Medicines, cosmetics, old pans or cutting boards? Gluten is insidious and can hide anywhere, for a long time.

Brooksbelle Newbie
Brooksbelle
Posted

Brand-new here too. I discovered that along with gluten, I was also intolerant to soy (at least for the time being anyway). I'd definitely double-check for the gluten, but keep in mind there may be another intolerance or two that's bugging you.

Hope your tummy gets happy as quickly as possible!

CarolinaKip Community Regular
CarolinaKip
Posted

Hello all. I'm a newbie, diagnosed in May with celiac disease after the blood tests and biopsy. My diagnosis came after 4 years of lots of issues (which I'm sure you hear all the time) but what finally got me to demand an answer was the horrific reflux and vomiting I started to experience about 6 months ago. Last month during a doctor visit he told me that once I go gluten-free my symptoms should subside pretty drastically within a month. Well, I spent the morning puking and running to the bathroom. I guess I'm just looking for some reassurance that it will, indeed, get better eventually.

I was in pain and had issues for almost a year. It wasn't until I gave up corn and soy that I had a pain free day. Gluten can be everywhere in a shared household. I was CC myself in the beginning a lot. You need your own toaster and strainer, cutting board etc. It's a lot to wrapped your mind around in the beginning, but with time, it does get better! Read and read here you will learn a lot to help you. Keep a food diary also to help you figure out if other foods bother you. Everyone is different, it depends on how much damage you have. It will get better!!! It takes time, be patient with yourself and know you're learning how to be gluten-free. Right now I would focus on any CC in your home. Make sure your food is on a top shelf. Baggies to hold food in fridge is good. Seperate condiments etc. Probiotics and vitamins as well! Hang in there!!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I've been gluten-free for 2 1/2 weeks. I'm glad you asked the question. I still feel pretty lousy and wasn't given any sort of time frame to feel better. I felt awful after eating last night and wondered if it was normal.

I'd like to add...yesterday my son grabbed the can opener to open his spaghettios. He asked if I had gotten a seperate can opener for myself..and I hadn't thought of that! Be sure you have seperate everything.

samie Contributor
samie
Posted

It could be cc or another food allergy or intolerence. I had to stop dairy cause of the lactose.

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  • Posts

    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
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