Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastrisis


kristen34

Recommended Posts

kristen34 Newbie

So I was just randomly diagnosed with celiac a month ago and showed absolutely no GI symptoms. I had a lot of headaches and back pain but stomach issues. After being diagnosed and completely going gluten free I started to feel 10x worse and my stomach throbbed. I was just informed I have gastrisis..which doesn't completely make sense because the number one symptom is vomiting and i haven't thrown up since i was 5 years old. After taking medication for gastrisis I'm still feeling forse than I did before being diagnosed with anything. My doctor has been no help at all. I've also been gaining weight. I lost weight when I was diagnosed and I've gained it almost all back but I'm not sure if I can stop gaining weight when I get back to my normal weight. HELP please


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Welcome, Kristen!

Do you mean gastritis? I had gastritis (inflammation), which showed up when my GI doctor did the endoscopy/biopsy. It was news to me as I never had vomiting or any pain from it. What kind of meds did your doctor prescribe?

ravenwoodglass Mentor

Some of us become much more sensitive to gluten after we have removed it from our diet. Could you be getting cross contamination somewhere? Did you call the maker to be sure that the med you are taking is gluten free? If you had positive blood work it might be a good idea to have the panels run again to see if your numbers are going down.

kristen34 Newbie

Oops I meant gastritis. I'm on omeprazole. I'm very careful with not having contaminated foods..I think.

kristen34 Newbie

Also I had crazy blood work numbers the first time. I was very strong positive for every celiac test

sa1937 Community Regular

Oops I meant gastritis. I'm on omeprazole. I'm very careful with not having contaminated foods..I think.

I figured that's what you meant. I think I've read of people here who have been on omerprazole or other acid reducing meds and had too low stomach acid. Hopefully someone else will chime in who has had that problem.

lynnelise Apprentice

I suffer from gastritis and I pretty much never vomit either. However when I'm having a flare-up my stomach burns and hurts. I also feel a lot of pressure in my ribs. They gave me Carafate which is an ulcer medicine that protects your stomach from acid and allows it to heal. It worked wonderfully!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

So I was just randomly diagnosed with celiac a month ago and showed absolutely no GI symptoms. I had a lot of headaches and back pain but stomach issues. After being diagnosed and completely going gluten free I started to feel 10x worse and my stomach throbbed. I was just informed I have gastrisis..which doesn't completely make sense because the number one symptom is vomiting and i haven't thrown up since i was 5 years old. After taking medication for gastrisis I'm still feeling forse than I did before being diagnosed with anything. My doctor has been no help at all. I've also been gaining weight. I lost weight when I was diagnosed and I've gained it almost all back but I'm not sure if I can stop gaining weight when I get back to my normal weight. HELP please

Gastritis is not caused by excess stomach acid. So acid blocking drugs will not 'cure' gastritis. Stomach pain can be caused by an infection from the H. Pylori bacteria, which can cause ulcers. Unless you have ulcers, your stomach can tolerate high amounts of stomach acid. However, unless your doc tested you for H. Pylori and your test was positive, you probably don't have ulcers. Nevertheless, gluten intolerance and other delayed reaction allergies can cause stomach issues, because allergic reactions in the intestine prevent proper digestion of food. You can feel overly full with very little food and even get stomach aches. Moreover, insufficient stomach acid, rather than excess stomach acid, can also cause stomach pain.

Before I was diagnosed with celiac disease, I often refluxed food and even threw up easily. However, I never refluxed acid. Nevertheless, a doctor diagnosed gastritis and put me on acid blocking drugs. Years later, I was diagnosed with celiac disease, abstained from gluten and still got stomach pain. A stool test diagnosed H. Pylori bacteria. However a Heidelberg capsule test showed that I had impaired stomach acid production (too little acid). So I was given mastic gum and L-glutamine to treat the H. Pylori and heal my stomach. Then I began taking supplemental Betaine Hydrochloride to increase my stomach acid. Now I rarely feel overly full after eating and almost never reflux (unless I eat foods which relax the lower esophageal valve, like peppermint, caffeine or chocolate). If I eat a large meal and don't take enough supplemental HCl, I can get stomach discomfort. However, as long as I get enough supplemental acid, I feel fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,082
    • Most Online (within 30 mins)
      7,748

    MelanieR
    Newest Member
    MelanieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.