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So Frustrated Still Not Pregnant


Mandy M

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Mandy M Rookie

I'm so frustrated. I'm back on the diet now from not being on if for 17yrs. I'm just frustrated because I'm still not pregnant. I'm not sure why. Anyone have any ideas?


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lovegrov Collaborator

I'm so frustrated. I'm back on the diet now from not being on if for 17yrs. I'm just frustrated because I'm still not pregnant. I'm not sure why. Anyone have any ideas?

How long have you been gluten-free? It could take months and months and months to undo the damage. Heck, my wife doesn't even have celiac to recover from and it took us 8 months to conceive our first child.

richard

tarnalberry Community Regular

I'm so frustrated. I'm back on the diet now from not being on if for 17yrs. I'm just frustrated because I'm still not pregnant. I'm not sure why. Anyone have any ideas?

How long have you been trying?

How long have you been gluten free?

Have you been tested for any vitamin deficiencies?

Do you chart your cycle so that you know if/when you ovulate, how long your luteal phase is, and if you are experiencing chemical pregnancies that don't stick?

Do you have any other medical issues that compound the issue?

There's SO MANY variables here that it's hard to know what to say based on just what you wrote.

Jungle Rookie

When we were trying to conceive after 2 wonderful babies and then 3 consecutive miscarriages (likely celiac related I now know) I found another forum "bellybelly" to be, like here, a wealth of information.

It really helps chatting with people who are in the same situation as you. And it was so cool to see people who were lamenting "is this ever going to happen?" posting that they were pregnant. It was great to have support each month from people who were just as nuts as I was in "the two week wait" waiting to be able to test and then also have someone who understands when it is negative or someone you can tell right away when it is positive.

Mandy M Rookie

Well my husband and I have been trying for 3yrs. But I've only been gluten free "again" since Sept. Its just frustrating because its been so long. I haven't had any mischarages that I know of, no pregnancies at all. Just frustrating. Right now i'm on fertility pills. Just got bumped up to 100 mg. I don't take my temps as of lately. I'm going to start again this cycle. I do also do the ovulation tests. Its fun trying but let me tell ya its so frustrating waiting the two weeks. Not only do you have to face the sadness of the fact your not pregnant but then you have to deal with your period also. Haven't been tested for Vitamin defincincys but I have been taking pre natals for the last three years. I might be diagniosed with Immflamatory joint disease but thats about it lately. Thank you everyone for your help

lucia Enthusiast

I'd suggest acupuncture. You may have heard this from your fertility clinic too. Acupuncture has consistently been shown to increase women's chances of getting pregnant. It's not magic - but nothing is, unfortunately. : ( Besides that, people get pregnant after years of undiagnosed fertility issues following going gluten-free. It just takes time.

A year ago, my periods were so painful that I couldn't get off the couch for up to a week during them. My periods had been getting more and more painful with age, until suddenly they became unbearable at the exact same time I started getting painful, digestive cramps from gluten. I would have premenstrual cramping, followed by a period that was basically just clots for a couple of days and then a weak, dark brown flow for several more days. To my surprise, that's changed, which I believe is from a combination of acupuncture and a gluten-free diet. I've recently had a few months when I've had no pain at all. And my menstrual output is now balanced, clear and a bright, shiny red. Something's changed in there!

I haven't been able to get pregnant - yet. But I feel like I'm getting closer to that possibility as I get healthier. I feel your pain though. It's been 3 years for me too. And, although I've been gluten-free since March 2010, I really only started getting healthy with the SC diet in August 2010 so we're on about the same timeline. I'm undergoing fertility treatments too. It's rough. : (

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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