Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Experiences In Nyc?

slee11211

By slee11211
in Doctors

Recommended Posts

slee11211 Apprentice
slee11211
Posted

Hi,

Just recently diagnosed, and would love to hear from others in NYC who have been through this. I've been in NYC for 19 yrs and have dealt with "domino effect" symptoms, as well as straight out Celiac symptoms the entire time

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

You're in luck with the doctor who diagnosed you. By "new doctor," do you mean that s/he is young? Maybe that is best, since s/he will be up-to-date with all of the newest research. The medical community has made great strides in understanding celiac/gluten intolerance in just the past few years, never mind the last decade.

I live in NYC too. I ended up relying on the Celiac Center, but another doctor besides Peter Green. I wish I could say that my experience there was incredible and changed my life. But it wasn't that way. I think that Western medicine in general, even at its most advanced, is still pretty ignorant about autoimmune conditions.

By the time I went to the Celiac Center, I had already navigated the difficult (and frustrating) process of figuring out what was wrong with me. Ultimately, I self-diagnosed after a GI specialist (& medical school professor - yikes!) diagnosed me with gastritis and neuropathy but failed to recognize that these things together pointed to celiac. My doctor at the Celiac Center supported my self-diagnosis, which was a relief, but I was still quite sick and I didn't feel like she had the tools to address this. She put me through a battery of tests, all of which were negative, and sent me to a nutritionist who frankly was pretty useless since I had already figured out how to read labels and make substitutions for bread. To my surprise, the nutritionist was focused on very basic concepts for someone already on a gluten-free diet.

Incidentally, I did stumble onto a lecture at the Kripalu Center in Western Mass on "Gut Health" by a nutritionist with holistic leanings. It was great! The lecturer mentioned Dr. Mark Hyman several times, and since then I've reviewed some information online by this doctor. He is a leading influence in what's called "Functional Medicine". Personally, I would look into this, if I could. But functional doctors do not usually take health insurance since they feel it's important to spend more time with their patients than is possible with current insurance laws.

I am working with an acupuncturist now (also, not covered by health insurance ... sigh). I feel that Chinese medicine understands autoimmune conditions much better than Western medicine. I don't know where I'd be without it.

Good luck!

WinterSong Community Regular
WinterSong
Posted

I'm in NYC, as well, and I'm with Dr Michael Eng. My first appointment with him I said, "I think I might have Celiac Disease," and he agreed to test me right away. He's very nice and attentive, and I never have a difficult time scheduling appointments. I highly recommend him.

  • 5 months later...
nancycia Newbie
nancycia
Posted

i was wondering if anyone can tell me of a excellent celiac doctor in nyc, that's not dr.peter green (my insurance does not cover him)?

im currently seeing a doctor at the colombia celiac center and not happy with my doctor.

I was diagnosed 2 years ago in california and have moved to nyc and took a doctor in peter greens office thinking they would be good, since they are in the same office but im not happy with my doc.

Ive been on a gluten-free diet for 2yrs and still have symptoms of bloating and bad digestion etc....

I need a god celiac doc that can help me why i still have symptoms!

thanks!

AndrewNYC Explorer
AndrewNYC
Posted

I've seen Green and he is a good guy and good doc. The problem I think people perceive with him is that there is some magic bullet to treat celiac. There isn't. I think he gives probably the most comprehensive blood work around for celiac patients and he does a good exam. The only objective problem I have with his office is that its difficult to get an appointment.

I usually see James Marion here: Open Original Shared Link He knows his stuff well and he's been quite good at catching secondary issues I have had in addition to celiac and guiding me through them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,806
    • Most Online (within 30 mins)
      7,748
    MoonBear
    Newest Member
    MoonBear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.