Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed


kcmcc

Recommended Posts

kcmcc Newbie

My 8 year old daughter was recenly diagnosed with celiac, I am finding it very difficult to keep her gluten-free, she is in daycare 5 days a week and she will be going back to school in 3 weeks and I am not sure how she is going to eat at school. I have a hard enough time feeding her at home and keeping all gluten away from her. I am confused on what she is allowed to have, one list I read will say that she can have something and another list will say she can't. I am very overwhelmed! Does anyone have any suggestions?

Help!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

https://www.celiac.com/st_main.html?p_catid...-53105064942.04

Here is a link to the safe and forbidden list.

It won't be so difficult to keep her gluten free. I have a seven year old son who has Celiac. We do fine. There are some cute t-shirts that have sayings like, "Gluten free Flower" on them. Getting her some might help her begin to take ownership over her disease. I find that my son has a sense of pride in his Celiac status. We've done the walk/run for Celiac 4 years in a row, gotten him several t-shirts that he wears quite proudly, separated HIS food from the family's food. We write his name on his peanut butter/jelly/butter/cream cheese/etc. Keep his food in a separate pantry that only he uses.

*technically this isn't true anymore as I've converted the entire family over to gluten free this past month, but I'm going on what we did for the past four years that really solidified his acceptance of HIS disease.*

You need to stress to the school that they cannot offer her any foods you haven't approved. You can make her a lunch box, or bag of special treats she can go get during the school year when there are class parties, treats, etc. My son loves having this special privledge. I keep those non-refridgeratable puddings in the box, some spoons, tootsie rolls, m&ms bags, lolli-pops, etc in his snack bag. The teacher keeps it for him near her desk and directs him to pick out a treat when there's an occassion for it.

I would suggest Kinnikinnick white tapioca rice bread for her sandwiches, they also make excellent donuts, bagels, pizza crusts. Great shipping deals, as well.

www.kinnikinnick.com

Chebe bread is great and versatile. www.chebe.com They have great recipe ideas at the site but one of our favorites is making hot pockets with it. It's easy to make, like bisquick.

Guest nini

my daughter is five. She will be starting Kindergarten next week. her daycare has been incredibly supportive of her dietary needs, and I am going to miss that. But, I think this will be manageable. I have tried to teach her to be responsible for what goes into her mouth. Only things that I send for her or that I have pre approved. I've started teaching her how to read labels even though she's technically not reading yet...

I will be packing her lunch everyday. I don't yet know if there will be a microwave for her to heat things up for a hot lunch, but I can heat things up in the morning and wrap them in foil for her. The Kinnikinick Tapioca bread is excellent for sandwiches, We also make "hot pockets" out of Chebe bread, Thermoses will do a good job of keeping soups hot, and I bought a case of Ener-G crackers. If she won't eat them I will! Fruit cups, cheese sticks, veggies and ranch dip are all good options for a lunch box. Yoplait yogurt tubes are fun and gluten-free, Hunts pudding packs, Cheetos, Fritos, Funyons are all treats that she might get once a week or so...

I like the idea of giving the teacher a "treat" bag to keep on hand for those unexpected times when the other kids will be getting a treat.

All in all, I think it's very doable, and instead of thinking how hard it's going to be, focus on how much fun you are going to have being creative in finding wonderful gluten-free foods for her to eat at school!

kcmcc Newbie

Thank you, your suggestion will be very helpful. I have another question, I have read that vegetable oil contains gluten but alot of the things that I have been told are gluten-free have vegetable oil in the ingredients. Also citric acid. Are these things safe to give my daughter?

Thank you,

Kristina

Jnkmnky Collaborator

Vegetable oil is gluten free unless for some strange reason there is a gluten containing ingredient added to it. I don't know where you would have heard this information.

kcmcc Newbie
Vegetable oil is gluten free unless for some strange reason there is a gluten containing ingredient added to it. I don't know where you would have heard this information.

<{POST_SNAPBACK}>

:D THANK YOU FOR ANSWERING, THAT WILL MAKE THINGS EASIER. I WILL HAVE TO FIND OUT WHERE I HEARD/READ THAT INFORMATION.

THANK YOU

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.