Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed

kcmcc

Recommended Posts

kcmcc Newbie
kcmcc
Posted

My 8 year old daughter was recenly diagnosed with celiac, I am finding it very difficult to keep her gluten-free, she is in daycare 5 days a week and she will be going back to school in 3 weeks and I am not sure how she is going to eat at school. I have a hard enough time feeding her at home and keeping all gluten away from her. I am confused on what she is allowed to have, one list I read will say that she can have something and another list will say she can't. I am very overwhelmed! Does anyone have any suggestions?

Help!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

https://www.celiac.com/st_main.html?p_catid...-53105064942.04

Here is a link to the safe and forbidden list.

It won't be so difficult to keep her gluten free. I have a seven year old son who has Celiac. We do fine. There are some cute t-shirts that have sayings like, "Gluten free Flower" on them. Getting her some might help her begin to take ownership over her disease. I find that my son has a sense of pride in his Celiac status. We've done the walk/run for Celiac 4 years in a row, gotten him several t-shirts that he wears quite proudly, separated HIS food from the family's food. We write his name on his peanut butter/jelly/butter/cream cheese/etc. Keep his food in a separate pantry that only he uses.

*technically this isn't true anymore as I've converted the entire family over to gluten free this past month, but I'm going on what we did for the past four years that really solidified his acceptance of HIS disease.*

You need to stress to the school that they cannot offer her any foods you haven't approved. You can make her a lunch box, or bag of special treats she can go get during the school year when there are class parties, treats, etc. My son loves having this special privledge. I keep those non-refridgeratable puddings in the box, some spoons, tootsie rolls, m&ms bags, lolli-pops, etc in his snack bag. The teacher keeps it for him near her desk and directs him to pick out a treat when there's an occassion for it.

I would suggest Kinnikinnick white tapioca rice bread for her sandwiches, they also make excellent donuts, bagels, pizza crusts. Great shipping deals, as well.

www.kinnikinnick.com

Chebe bread is great and versatile. www.chebe.com They have great recipe ideas at the site but one of our favorites is making hot pockets with it. It's easy to make, like bisquick.

Guest nini
Guest nini
Posted

my daughter is five. She will be starting Kindergarten next week. her daycare has been incredibly supportive of her dietary needs, and I am going to miss that. But, I think this will be manageable. I have tried to teach her to be responsible for what goes into her mouth. Only things that I send for her or that I have pre approved. I've started teaching her how to read labels even though she's technically not reading yet...

I will be packing her lunch everyday. I don't yet know if there will be a microwave for her to heat things up for a hot lunch, but I can heat things up in the morning and wrap them in foil for her. The Kinnikinick Tapioca bread is excellent for sandwiches, We also make "hot pockets" out of Chebe bread, Thermoses will do a good job of keeping soups hot, and I bought a case of Ener-G crackers. If she won't eat them I will! Fruit cups, cheese sticks, veggies and ranch dip are all good options for a lunch box. Yoplait yogurt tubes are fun and gluten-free, Hunts pudding packs, Cheetos, Fritos, Funyons are all treats that she might get once a week or so...

I like the idea of giving the teacher a "treat" bag to keep on hand for those unexpected times when the other kids will be getting a treat.

All in all, I think it's very doable, and instead of thinking how hard it's going to be, focus on how much fun you are going to have being creative in finding wonderful gluten-free foods for her to eat at school!

kcmcc Newbie
kcmcc
Posted
  • Author

Thank you, your suggestion will be very helpful. I have another question, I have read that vegetable oil contains gluten but alot of the things that I have been told are gluten-free have vegetable oil in the ingredients. Also citric acid. Are these things safe to give my daughter?

Thank you,

Kristina

Jnkmnky Collaborator
Jnkmnky
Posted

Vegetable oil is gluten free unless for some strange reason there is a gluten containing ingredient added to it. I don't know where you would have heard this information.

kcmcc Newbie
kcmcc
Posted
  • Author
Vegetable oil is gluten free unless for some strange reason there is a gluten containing ingredient added to it. I don't know where you would have heard this information.

<{POST_SNAPBACK}>

:D THANK YOU FOR ANSWERING, THAT WILL MAKE THINGS EASIER. I WILL HAVE TO FIND OUT WHERE I HEARD/READ THAT INFORMATION.

THANK YOU

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...