Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Know Of A Forum For Food Allergys Linked With Behavior?

mommyto2kids

Recommended Posts

mommyto2kids Collaborator
mommyto2kids
Posted

I just don't know what to do for the school year. Do I try to allow it to be fed to him in moderation or just say he can't have it period? He gets mean and has no self control when he eats it. Grandma fed him a big slurpy that was red today and when they got home, I knew something was wrong by his behavior. If you know of a forum dealing with this that could hel me, please let me know. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brigitam Newbie
brigitam
Posted

This site has great info but I don't know if it is the same in America as it is here in Australia. I would assume it is. Good luck. Brigit

Open Original Shared Link

Mizzo Enthusiast
Mizzo
Posted

Have you ever had him tested? My friends daughter is allergic to Red dye and it started as behaviour issue's and turned quickly into anaphalactic allergy? I think the older the girl got the more she ingested and they became aware of the reaction more obviously.

mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

How do I get him tested for food dye? Two days ago he went into an itch session for hours with an itchy mouth driving him nuts with lots of crying. We didn't know what it was from. He was sweeping leaves right before. So we think it was some kind of allergy to plants. We are going to ask for an epipen to be on the safe side.

StephanieL Enthusiast
StephanieL
Posted

There aren't proteins in food dyes, so it isn't technically an "allergy" but an intolerance. Most traditional Dr's won't test for them but you may be able to find a Do or Chiro who would test for them.

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

You might check out the Feingold Diet website. They know a lot about kids and food chemical sensitivities. Open Original Shared Link

eatmeat4good Enthusiast
eatmeat4good
Posted

Fedupwithfoodadditives.com is an excellent site. You may find he is allergic or intolerant to other foods too...like salicylates...and that would then add in yellow food coloring, tartrazine, annatto, and the benzoates which are in almost all carbonated flavored pop and in some juices too.

My son and I have Celiac/Gluten Intolerance in addition to the Salicylates intolerance. Red and yellow food dyes are awful...He gets asthma...I get hives...both of us get bad moods.

Keep eliminating and exploring. You will figure it out.

NO...I would not let the teacher give him treats with red food coloring. He will be miserable and so will everyone around him. If it effects his moods, it will also effect his relationships with people...and that would not be worth saving the school teacher the inconvenience of giving it to him. Good luck, it is really hard to figure all this stuff out...but once you do then you know what to avoid and your life can be better and so can his!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

My husband wants him to have it because he does not realize how bad he behaves when he has it. The teachers usually pass out the cup cakes right out the door or the last 5 minutes of class. So they don't experience the behavior. I approached the school last yr and they don't want to change anything. Holliday parties are super out of hand. Every mom brings a cake and they are all served. The teachers leave it up to the parents and take no responsibility for it. Two wonderful parents took a responsible approach in dd's class with parties, not so in son's class. Thanks for listening.

I'd at least like the teacher to tell me when he is served a cup cake and the colors and in a perfect world she'd tell me the day before what is being brought so I could plan accordingly. The teacher last yr refused. Lets pray for a better year. I have a signed medical note in his file for food dyes and sugar. What are my rights and how do I learn what they are? I am in CA?

bartfull Rising Star
bartfull
Posted

I think you will have to get "mean". If it is in his file at school that he can't have this, and his teacher refuses to see to it that he doesn't, he/she is courting a lawsuit for himself, and for the school. If you just tell him AND the school administation that, I bet you'll see results!

domesticactivist Collaborator
domesticactivist
Posted

Our approach when the kids are in that kind of setting is to put it in writing and only allow our kid to have food from home. You should be able to get a list of party days from the teacher and send him a treat he can have.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.