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Celiac Symptoms...

Seeleeack

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Seeleeack Newbie
Seeleeack
Posted

Hello there. I'm 21 and have had occasional diarrhea for the past 15 months. I don't know if stress was the trigger but when it started I was under major stress. My diarrhea came out of the blue, and I was having it 2-3 times a day for a few weeks, I had a stool test and a blood test which were normal. My doctor said it was IBS. Since then my condition has improved, but I still get diarrhea once every 2-3 weeks. I only ever get it after a dinner, never breakfast or lunch. I'm asking whether this could be celiac as I do eat a lot of gluten. What seems to happen now is a constant cycle - I'll have diarrhea after a dinner, then the next few days my stools are perfectly normal, and then they gradually get softer (colour is usually lighter and they start to smell quite foul and float more) and more frequent until the next bout of diarrhea, then they're back to normal again and the cycle continues. I was wondering whether if this could be a build up of gluten over the days, that my body then flushes out? How long does gluten take to affect you? Is it possible for a build up over the course of a couple of weeks that would then cause diarrhea or is it normally an instant thing? I also get quite bad gas particularly at night. Could I have Celiac? Thank you.

Edit: I've read online that anxiety/depression is a symptom also - I have been suffering with severe anxiety for the past 8 or so months, i've been recently put on beta blockers which have helped me a great deal, so is anxiety a sign of celiac? I also get brain fog now and then also.

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Seeleeack Newbie
Seeleeack
Posted
  • Author

Anyone??

ravenwoodglass Mentor
ravenwoodglass
Posted

Your D pattern was the same as mine was for years. Until it became a daily and then a day and night occurance. Ask your doctor to run a celiac panel, including a total IGA and then when you are done with testing for celiac go ahead and give the diet a good strict try and see if that helps your problems.

Seeleeack Newbie
Seeleeack
Posted
  • Author

thank you for the response, I was looking at foods high in gluten, and nearly all of them on the list have caused me problems!

GottaSki Mentor
GottaSki
Posted

Ravenwoodglass's answer is perfect - great advice - just wanted to add that anxiety/depression can be symptoms of Celiac Disease.

Goof Rookie
Goof
Posted

I definitely agree on the blood tests! Since it's so minimally invasive, it's a good idea to check. The flag went up when you said you're getting the brain fog, which was one of my symptoms that stood out after a while. I also had mood swings, too. So it definitely can affect the way your brain works.

AVR1962 Collaborator
AVR1962
Posted

My suggestion is to request a test for Celiac. However,realize the result smay not be accurate and you still may have an intolerance and the test will be negative. Personally, after the test if you can have one done, then I would go off glutens and dairy. Docs noramlly have you stay off for 2 months......I was able to tell in 3 weeks. Then choose one of the other to try first....load for 3+ days and see if you can notice anything. Then whether you notice anything or not, go off whicever one you tried first.....if no reaction try the other. If you did have a reaction wait at least 3 days before trying the other so you know which one, if any, is giving you trouble. Dairy intolerance is the most common, gluten ranks next and then high fructose (according to my gastro doc).....I have all 3!!!!

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pain*in*my*gut Apprentice
pain*in*my*gut
Posted

I definitely agree on the blood tests! Since it's so minimally invasive, it's a good idea to check. The flag went up when you said you're getting the brain fog, which was one of my symptoms that stood out after a while. I also had mood swings, too. So it definitely can affect the way your brain works.

The brain fog caught my eye, too. Sometimes I feel drunk after eating gluten! Get the blood tests....that would be a good place to start!

Seeleeack Newbie
Seeleeack
Posted
  • Author

okay I shall get tested, thank you for the advice!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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