Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy

Hawthorn

By Hawthorn
in Food Intolerance & Leaky Gut

Recommended Posts

Hawthorn Rookie
Hawthorn
Posted

I did a gluten challenge for a month a while back (ended on 1st july on specialists advice). Since that date I have been gluten free.

I am still having problems for which I have been back to the doctor. I was chronically constipated, had acid reflux, got a cough, and developed breathing problems too in the last couple of weeks.

Now, I was trying to take probiotics in the form of a multivitamin and also had some live goats yoghurt. When I introduced these, the heaviness in the chest started. It's not a wheeze exactly, but more like the feeling you get when you're having a panic attack? And yeah, it does make me panic, which makes it worse (vicious cycle)

So, I cut these out. The chest thing got better. Last night tried a couple of spoonfulls of the goat yoghurt....today, the heaviness in the chest is back and my stomach is cramping up a storm, I had acid after it too.

My doctor I believe is fairly convinced I'm a hypochondriac, and has simply given me some antispasmodics and antacid to take for the next month.

I had the blood test for celiac AFTER being gluten free for months, and the doctor had me eating gluten for just two weeks before doing that test. It was negative. Now I don't know which way to turn and feel completely on my own with it.

When I mentioned the chest tightness to the doctor he said it was to do with acid reflux and the acid getting into my lungs. Not sure he listened when I said about it being milk/probiotic related. I'm not certain which of these or both is causing the problem. I definately had a reaction to goat yoghurt. I'm too scared to try the probiotics :unsure:

Is it possible to have this type of reaction to lactose and be ok with casein, or does this sound like a casein thing too?

Normally I'm a pull up your big girl panties and deal with it kind of person, but at the moment I am just in a bit of a mess. I feel like the doctors don't care, I'm anxious, struggling to know what to eat (feel a bit like food is the enemy) totally and utterly exhausted and I'm pretty sure the anxiety is not helping matters at all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gluten free overseas Apprentice
gluten free overseas
Posted

Is your multivitamin gluten free? Some vitamins use gluten as a bonding agent--it's one of those stealthy glutening things!

If it is gluten free, then I think you ought to go off all animal milk. Do the elimination diet method and see if you feel better.

I am off gluten and dairy too (because of my son)--there are still lots of delicious things you can eat. There's coconut milk ice cream or frosting, you can use almond milk in your cereal. Hang in there!

Hawthorn Rookie
Hawthorn
Posted
  • Author

Is your multivitamin gluten free? Some vitamins use gluten as a bonding agent--it's one of those stealthy glutening things!

If it is gluten free, then I think you ought to go off all animal milk. Do the elimination diet method and see if you feel better.

I am off gluten and dairy too (because of my son)--there are still lots of delicious things you can eat. There's coconut milk ice cream or frosting, you can use almond milk in your cereal. Hang in there!

Hey, thanks for the reply :) Yes, the multivit/probiotic is lactose and gluten free. It DOES contain milk proteins though.

I am so confused because I had been taking lactofree milk with no side effects except possibly heartburn (but I had attributed the heartburn to the gluten challenge irritating my stomach) Yet, aren't goat milk products supposed to be more acceptable to the stomach than cows milk products, and yogurt safer still? Gah. Confusing.

I have ordered the GAPS diet book and I'm going to give that a try. I just want to be able to function. And to stop nagging the doctor because I feel and have felt for the longest time that doctors prefer to use medication to mask symptoms than they do to actually try and find the root cause.

I shall try the almond milk, although at the moment I seem ok with soy. I do not want to speak too soon on that one though :blink:

GFinDC Veteran
GFinDC
Posted

Yogurt is generally more casein protein than lactose sugar. The bacteria eat the yummy lactose sugar to make yogurt. So you could be reacting to casein protein or leftover lactose or the angst of life or all three! :) Sorry, I am in a mood today. anyhow, hard cheese are mostly casein protein and probably some other protein too. So if you eat hard cheese and get sickly that is a clue.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.