Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peripheral Neuropathy

Hungrylady

By Hungrylady
in Coping with Celiac Disease

Recommended Posts

Hungrylady Rookie
Hungrylady
Posted

As part of this disease I have peripheral neuropathy. I wear braces and edema gloves to bed every single night since I got pregnant (5 1/2 years ago). I can't talk on the phone or use the mouse very long, etc....horrible pain and nerve shots, falls asleep, it's a mess. I am showing a tiny bit of improvement already so I am excited. I was looking up things I might be able to do to improve things more and came across using a tens unit. My hubby has one in the basement he used for his back a million years ago. So it is actually something I can try. Before I do I was wondering if anyone else has used it and did it improve your hands and if so how?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Before you try this can you get a consult with a PT? They could advise you on whether it might be something that would help and make sure you know how and how long to use it.

Something else that may help is sublingual B12. I don't know if you have had the levels checked but often blood levels read higher than they really are. B12 is not a vitamin you can 'OD' on so if you are not taking it try some. Don't be scared off by the high amount but do make sure they are gluten free and the sublingual not the swallowed pills.

Glad to hear the diet is helping but it can take awhile when the nervous system is involved. I used to have to brace both legs at night myself and know how uncomfortable that can be. I had to do it because I would dislocate though. Once my edema went away I stopped dislocating as much so hopefully once you heal more things will improve for you also.

Hungrylady Rookie
Hungrylady
Posted
  • Author

wow, ouch. Glad it's better for you! Yes, I take DEVA B12 with folic acid&b6, sublingual, under tounge. I didn't think to ask my PT, havent seen her since she came up with the edema gloves under the braces. I can't wait to burn those braces, lol.

Takala Enthusiast
Takala
Posted

Used one for c spine injury - honestly the most useless, ridiculous thing, one is trying to get rid of the sensation of the nerves being impinged, so this 10s unit thing instead shoots you with the same sensation so it's even more annoying. Stick to the diet, supplements, try to keep busy so you don't think about the constant buzz, and it should eventually go away. Gentle yoga helps (no straining stuff) and meditation.

shadowicewolf Proficient
shadowicewolf
Posted

Have you tried water theraphy? I've heard that helps with nerve issues.

Hungrylady Rookie
Hungrylady
Posted
  • Author

Have you tried water theraphy? I've heard that helps with nerve issues.

No, but i'll look into water therapy, sounds nice. I am planning to swim to help regain strength when my son starts school in two weeks (thank goodness).

I guess the tens until would give me more of the same feelings. It doesn't actually heal the nerves huh? Somehow that's what I got in my head, lol.

Takala Enthusiast
Takala
Posted

No, it doesn't heal anything, it's the electrical equivalent of "white noise" which the theory is that by playing that, one does not hear the more annoying noises and it acts as a jamming/blocking device. If you want to heal, stick to the diet and take vitamins and exercise so your body can metabolize and use the nutrients properly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.