Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Mad!


ACopsWife

Recommended Posts

ACopsWife Rookie

I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub. I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor. She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days. We asked if this came from the manager and she said YES. I was so upset I was almost in tears. So I got a burger plain (HOW BORING!) So after my meal I asked to speak with the manager to express my frustration. We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs. He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault. I cleary stated it was doctor perscribed.

UGH!! I just needed to vent. This has been hard for me as it is and then this...How frustrating. I think I need to get a dining card, do you know where I can get one!

Thanks

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Here are some restaurant cards you can get:

Open Original Shared Link

I understand it is frustrating and there are encounters like that we will get.

Ordering something with no bread you have to make sure that the bread never touches what you eat because if they just take it off of the burger then it will be contaminated. It will always be a risk to eat out if the place serves gluten so just be prepared of that too.

Guest nini

Open Original Shared Link

has .pdf files of printable dining cards in both English and Spanish for free.

elonwy Enthusiast

I got my dining card from the celiac sprue association's intro packet.

Its more in depth than the other ones, and makes recommendations for what you CAN have too, which i like.

www.csaceliacs.org

hth

Elonwy

macman Rookie
I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub.  I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor.  She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days.  We asked if this came from the manager and she said YES.  I was so upset I was almost in tears.  So I got a burger plain (HOW BORING!)  So after my meal I asked to speak with the manager to express my frustration.  We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs.  He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault.  I cleary stated it was doctor perscribed.

UGH!! I just needed to vent.  This has been hard for me as it is and then this...How frustrating.  I think I need to get a dining card, do you know where I can get one!

Thanks

Heather

<{POST_SNAPBACK}>

I am surprised you stayed there and gave them any of your money. I had a frustrating experience at a Tony Roma's in NV. Their website say they are gluten-free. The restaurant said no-so I said bye-bye and told them I was headed to Outback.

Sorry you had that experience....

pixiegirl Enthusiast

I've read about similar experiences on these boards, I'm very thankful they have never happened to me. But I do agree with the poster that said, why did you stay? Probably you had other people in your party that wanted to stay but even so... there had to be other places that you'd all like that would be more accomodating. I make it a point to never go to places that won't work with me and to frequently visit the places that do. I'd never pass my money out to a restaurant like that.

Lastly, I think when the server told you that you should have politely said, Could you ask the manager to come to our table for a minute? However I'd be afraid in a place like that, that they would make it in the normal way and then take the bun off.

Oh well, I'm sorry you had such a rotten experience.

Susan

Canadian Karen Community Regular

I would have pointed out to the manager that they had better wake up and smell the gluten free coffee. I would have pointed out the high incidence of celiac disease in the Irish population and if they want to stay competitive in the restaurant business during the "celiac disease diagnosis revolution", they better be more accomodating......

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would have just said "It doesn't matter if YOU don't know why I can't have it - my doctor knows. As you've just stated you have a policy allowing the chef to make dietary accomodations, why are you discriminating against me in particular in applying that policy?"

  • 2 weeks later...
Dittenheim Newbie

Hi "Cop's Wife"

I had a very similiar situation last summer in Rhode Island (see the string I started "Discrimination").

I wrote a letter to the restaurant and never got a reply, so I wrote to the RI Commission of Human Rights who felt it was an important issue and instigated a suit on my behalf against the restaurant. Unfortunately, according to the ADA regulations no special accommodations or considerations need to be made for dietary restrictions, so the suit was denied.

A substitution of something else that is also on the menu and/or a willingness to leave something off the serving to protect our health is a very small concession for any restaurant to make. It's the difference between being dietary friendly and dietary hostile.

Anyway, give us the address of the restaurant you had your problem with and I will write a letter of complaint, as, I'm sure, many others will.

Restaurants that are so unaccommodating need to be publicized. There are enough of us (especially when you add in our non gluten-free family members who eat out with us) to make an impact on a restaurant's bottom line.

We need to share the replies (or lack thereof) we get back from the restaurants to see what effect our correspondence has on them. Not too many will be as dietary friendly as Outback, but some, I'm sure, will realize they need to be less dietary hostile and will change their policies - if only to allow substitutions when necessary.

Those which refuse to allow any concessions should be placed in a "Hostile Restaurants" list and we should boycott them.

- Dittenheim

PreOptMegs Explorer

It is situations like these that scare me away from eating out... I ate at Outback for the first time since my diagnosis. I was so scared of cross-contamination, I almost forgot to enjoy the food, but today I feel great and the waitress was so nice and considerate. I am not going to make it a habit, but it was nice to have a gluten-free meal outside of home....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,607
    • Most Online (within 30 mins)
      7,748

    Noniangie
    Newest Member
    Noniangie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.