Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nausea!


watata

Recommended Posts

watata Apprentice

I am just diagnosed a week ago. Have been gluten-free since then. I was hoping my nausea would get better. But in the last few days it has gotten worse. Anyone know if this gets better, or if anything else could be a culprit of nausea?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoshB Apprentice

Hate to be the bearer of bad new, but...

Lots and lots of people get worse before the get better. I did. You've got a chain of auto-immune reactions going off. It just starts off with your body hating gluten, when you have celiac disease your body has started hating itself, and so it damages your stomach, which sets off more immune response, which damages your stomach, which sets off... well you get it. Think of it like a car engine, if you cut the gas it's still turns over for a while.

Eventually if you don't keep feeding the reaction with gluten it will die out, but it might take even a couple months. And at that point you've not gotten better, you've just finally stopped doing new damage. Then you start healing.

So you haven't really healed anything yet, but you've probably dramatically changed your diet, and you're asking a damaged digestive system to adapt on the fly to a completely new balance of food.

Also, you may be one of the people sensitive to wheat as an opiate, and now you're having withdrawals. Yeah, I know that sounds crazy, but it's pretty well documented at this point. I went through it myself, and it was not fun. I've seen the original research before, but can't seem to find it now, so here's a link to a doctor's discussion on the subject: Open Original Shared Link

So all that sounds pretty bad, but press on. You're half way through the worst of it. If you are in withdrawal that should cut back soon, and your gut bacteria should be adjusting to your new diet which will help with the nausea. Remember to eat a lot of fruit and veggies. Even if you want meat and starches as comfort food. You don't have the wheat fiber to push things through anymore.

eatmeat4good Enthusiast

The nausea lasted several weeks for me. It was like my stomach didn't know what to do even with gluten free food. I took Promethazine for a few weeks and it made a big difference. It's a prescription, but if you are really miserable with nausea it really helps. There is a withdrawal period and you can have all kinds of symptoms from that, but eventually your body will adjust.

watata Apprentice

Yes I take promethazine 3 x a day and it just barely takes the edge off the nausea. Hoping this passes soon! Thanks for the responses.

mommyto2kids Collaborator

For me I realized that steak and greesy food makes me sick now. Chips can be unpredictable and any new processed food. Eating out makes me sick. I love millet bread and fruit and yogert. I usually do well with these things. Baked chicken is ok too.

Hungrylady Rookie

You can eat as much fennel bulb as you wish and it really does help! I hope you feel a little better every day. It does take time, sadly.

moose07 Apprentice

It took a few months for my nausea to go away. Drinking mint tea helped a little to calm my stomach down right after I started gluten free


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.