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Still Confused Hope Someone Can Answer This


Jinkomedy

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Jinkomedy Newbie

ok ive read couple books already and googled about celiac desease.

still confused tho.

so if i dont have celiac can i still be gluten intolarance or sensitive?

Or is being gluten intolarence another word for having celiac desease?

MOST IMPORTANT Question.

if gluten damages the small intestine (villi) for celiac desease positive people, does it do the same damage to the (villi) if i were just gluten intolarence or gluten sensitive?

ive been trying for almost 3 months eating only gluten free foods. i really cant take it any more. i cant eat with my friends, no one really understands, i cant go on trips,

i cant just go thru a drive thru when hungry.Gluten free food is expensive. now im broke. pretty much life sucks being on a gluten deit. It caused alot of stress thinking what foods contain gluten or is it contaminated. i bought all new utencils, toaster, but now im getting tired. im not really feeling any better. Honestly i pray to god why. and cry once a week.


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dilettantesteph Collaborator

To save on expenses, eat fewer prepared foods. Potatoes, carrots, pork, and rice are pretty cheap.

Cattknap Rookie

First of all - celiac disease is different than a wheat or gluten allergy although they do have some things in common.

Here is a link that might help you unerstand the difference:

Open Original Shared Link

First, you need to be tested for celiac (blood test) to determine if you have the disease as it is significantly more serious to have celiac than a wheat allergy. If you do not have celiac, go to an allergist and get tested to see which grains you are allergic to.

Stop buying so many "gluten free" products. Just eat whole, healthy foods. I buy gluten free pizza dough mix, pancake mix and Amy's gluten-free frozen dinners to keep on hand (Walmart carries these and they are about $2 cheaper per dinner than Whole Foods). I keep a loaf of gluten free bread in the freezer. I buy gluten-free oats (Walmart in their gluten-free section)....that is about the extent of the gluten free products that I buy.

As far as eating out and traveling - it can be done. More and more restaurants are becoming aware of and catering to those that can't tolerate gluten. Choose restaurants wisely - if you know you are going out to dinner with friends or are eating on the road, do research ahead of time. Let your computer search engine find gluten free restaurants/bakeries in your area or areas where you are traveling - they are becoming more and more frequent. I have found gluten-free cafes and restaurants in many cities across the U.S.

When we go out with friends, I call ahead to the restaurant and speak to the manager and ask about what is on the menu that I can eat. Many restaurants will glady put a meal together for you that does not containt gluten. I always explain briefly about the cross-contamination problem. Many restaurants will work with you - some restaurants are aware of cross-contamination. Some restaurants are clueless.

I have also eaten before going out and then just had a dinner salad with oil and vinegar dressing...just so I can see my friends, eat something and stay gluten free.

As another poster noted - eat whole foods and try to skip foods with sauces, dressings and soy sauce.

When we are traveling, I stop by Whole Foods and buy gluten free products - I'll carry a small disposable cooler in the car and fill it with Greek yogurt or low fat cheese sticks, fresh fruit, hard-boiled eggs, gluten free muffins, carrot and celery sticks...these are great lunch/breakfast items.

As far as fast food - I will occasionally go to Wendy's and buy a plain baked potato and pour their low-fat chili over it - it is delicious and very filling. I don't do a lot of fast-food though.

Not being able to eat gluten should in no way ruin your life. Stop whining! Your friends don't need to "understand" about your intolerance to wheat. Be proactive in planning where you can eat and what you can eat and working with your doctor to determine exactly what allergies/disease that you have.

Lastly, don't make your wheat intolerance the center of every conversation or thought. Really, no one wants to hear it. Deal with it intelligently and by actively seeking information and resources. Right now you are operating on assumptions - see your doctor!

kwylee Apprentice

so if i dont have celiac can i still be gluten intolarance or sensitive?

Or is being gluten intolarence another word for having celiac desease?

MOST IMPORTANT Question.

if gluten damages the small intestine (villi) for celiac desease positive people, does it do the same damage to the (villi) if i were just gluten intolarence or gluten sensitive?

ive been trying for almost 3 months eating only gluten free foods. i really cant take it any more. i cant eat with my friends, no one really understands, i cant go on trips,

i cant just go thru a drive thru when hungry.Gluten free food is expensive. now im broke. pretty much life sucks being on a gluten deit. It caused alot of stress thinking what foods contain gluten or is it contaminated. i bought all new utencils, toaster, but now im getting tired. im not really feeling any better. Honestly i pray to god why. and cry once a week.

I know it can be frustrating at first. But I think you're on the right track.

I am Non-Celiac Gluten Intolerant. My intestines are perfectly healthy and have never shown any sign of damage. But my body produces antibodies to gluten, which means that gluten is a foreign substance in my system. I was always a big gluten eater until I was in my 40's, when I finally started to show distinct signs of neurological distress, dizziness, brain fog, blurred vision. I'd have some intestinal issues at times but they were minor and sporadic and I never made a connection.

Here's the short of it: Celiac or not, and whatever your symptoms, if your body is intolerant to gluten, it will wage a constant battle with your system if you continue to eat it, and you CAN'T WIN unless you remove gluten. I walked around for years feeling ho-hum, not realizing that my body was at war, 24/7/365. This causes inflammation, which is probably at the root of most diseases. Gluten was slowly killing me. Now in my 50's I feel better than I did at 20, because a little over a year ago I made the simple choice to completely remove the "enemy" from my system.

If you've removed all traces of gluten AND you are sure you are not cross contaminating things, then I'd look to additional intolerances, dairy and soy come to mind. It's okay to feel sorry for yourself for awhile, engage a full-on pity party at first, as long as you are vigilant. And when you start to see changes in the way you feel and think, you'll know why it's important for you to do it.

This forum got me through the process. There are so many people here who know how you feel and aren't stingy about sharing their spot-on experiences. Let everyone here help you.

pain*in*my*gut Apprentice

I know it can be frustrating at first. But I think you're on the right track.

I am Non-Celiac Gluten Intolerant. My intestines are perfectly healthy and have never shown any sign of damage. But my body produces antibodies to gluten, which means that gluten is a foreign substance in my system. I was always a big gluten eater until I was in my 40's, when I finally started to show distinct signs of neurological distress, dizziness, brain fog, blurred vision. I'd have some intestinal issues at times but they were minor and sporadic and I never made a connection.

Here's the short of it: Celiac or not, and whatever your symptoms, if your body is intolerant to gluten, it will wage a constant battle with your system if you continue to eat it, and you CAN'T WIN unless you remove gluten. I walked around for years feeling ho-hum, not realizing that my body was at war, 24/7/365. This causes inflammation, which is probably at the root of most diseases. Gluten was slowly killing me. Now in my 50's I feel better than I did at 20, because a little over a year ago I made the simple choice to completely remove the "enemy" from my system.

If you've removed all traces of gluten AND you are sure you are not cross contaminating things, then I'd look to additional intolerances, dairy and soy come to mind. It's okay to feel sorry for yourself for awhile, engage a full-on pity party at first, as long as you are vigilant. And when you start to see changes in the way you feel and think, you'll know why it's important for you to do it.

This forum got me through the process. There are so many people here who know how you feel and aren't stingy about sharing their spot-on experiences. Let everyone here help you.

K-Wylee...thanks for posting this. ;) I have been trying to wrap my head around Celiac vs. non-Celiac gluten intolerance. This sums it up perfectly!

OP...you don't say if you have been tested yet. That could shed some light on your situation.

StephanieL Enthusiast
if you have the disease as it is significantly more serious to have celiac than a wheat allergy.

I am sorry but this isn't exactly true. You can die from an anaphylactic reaction to wheat which is MUCH more serious short term than the long term issues one faces with Celiac. While they are both very serious, to say on is more serious than the other is really a non-issue. Both of these people would need to avoid wheat or face real problems. One is more immediate but they are both very serious.

Lori2 Contributor

There was a study published in March on Celiac and Gluten Sensitivity


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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