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Do These Sound Like Symptoms...


mamaof2boys

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mamaof2boys Newbie

Here's a little background on ds who is 16 months old.......................................... Jack didn't gain any weight between 9 months and 14 months and then only gained 1.5 pounds from 14 months to 16 months....he currently weighs between 22 and 23 pounds. His appetite is incredible...he would eat all day if I let him. He has anywhere from 3 to 6 poops a day and they are very mucusy (full of what looks like snot..sorry I couldn't think of a better word) and they are very foul smelling. I'm not completely sure of what all the symptoms are but do these sound like they could be celiac?? He is also allergic to milk, peanuts, egg whites, tree nuts, fish and shellfish. Any help would be very appreciated as i'm going to make an appt with his ped for some testing and would like to get more information so I know what i'm talking about. He does eat quite a bit of bread, muffins, pasta and cereal so i'm definetely thinking maybe this is what his problem could be. Thank you for any advice.

Laurie


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lbsteenwyk Explorer

I think it is certainly worth pursuing testing of your child for Celiac Disease. Your child has several common symptoms of celiac disease: failure to thrive/failure to gain weight and frequent, foul smelling stools. Celiac children often have other food intolerances as well. Insatiable appetite is not one of the more common symptoms, but I have read other posts here about celiac kids who had a voracious appetite before diagnosis.

Most doctors have very little knowlege about celiac disease and still believe it is a rare disorder. Do your homework ahead of time. Here is link to a publication from the children's digestive health network that reviews appropriate screening and diagnosis of children with celiac disease:

Open Original Shared Link

You may also find the NIH Concensus Panel on celiac disease helpful:

Open Original Shared Link

Good luck in finding an answer to your child's health problem.

e&j0304 Enthusiast

I just wanted to let you know that your son sounds a lot like my daughter. We have been going around and around with doctors trying to figure out what is wrong with her and hadn't really gotten anywhere until a relative who's a pediatrician suggested celiac. I got an appointment with a ped. GI for her last week. He didn't think it was celiac, but ran a test anyway. We are stilll waiting for those results, but in the meantime I have placed her on the gluten-free diet. She has been on it for 5 complete days and is a different child already.

Ella couldn't go 1/2 hour without eating before and was clingy and irritable all the time. She just never seemed to get full. Now, she doesn't seem to obsessed with eating. She is able to function on a more "normal" level and her stools also seem a bit better today. Overall she just seems happier. We'll see I guess...we don't have a diagnosis, but I don't really need one if I'm seeing this much improvement in her. So far I'm very optimistic.

I hope you find the answers you're looking for for your son. I know how frustrating it can be.

I wish you all the best,

Shannon

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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