Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! So Confused About Ingredients


CeliacMom

Recommended Posts

CeliacMom Rookie

I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago.

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board, I am even more confused.

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free? Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage? How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term? (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats. I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Open Original Shared Link

Which one are you wondering about and why? :)

CeliacMom Rookie

I guess I am confused about the "vinegar" which I thought was okay.

This is what I found last night:

"Grey Poupon 1-800-622-4726 (Nabisco says that their white distilled vinegar source changes and may sometimes include the use of gluten grains)"

KaitiUSA Enthusiast

Yes, some vinegars are grain based but the gluten does not get through the distillation process. Distilled vinegar will be ok...it was thought to be bad before but it is pretty much agreed on that it is safe now.

Nabisco won't hide anything on labels though and will clearly indicate gluten.

lovegrov Collaborator

That's a CYA. Because distilled vinegar was on the possily bad list for so many years, and because some people with celiac still don't believe it's OK, some companies still warn about it. I ignore it.

richard

  • 2 weeks later...
Sophie's mom Newbie
I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago. 

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board,  I am even more confused.

 

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free?  Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage?  How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term?  (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats.  I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

<{POST_SNAPBACK}>

I, too, am feeling a little overwhelmed. I plan to start my 3 yr. old daughter on a "diagnostic/test" diet on Monday. Where/how can I get my hands on these lists?? Thanks for any help.

Lisa

Jnkmnky Collaborator

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

mstrain Rookie
Just ask for the Delphi/food list or the Silly Yak/restaurants list.  I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: .  Thank you!

<{POST_SNAPBACK}>

Hi celiac3270:

I think I asked for "the list" - sorry for not being clear! Could you please e-mail me both lists? Thank you so much!

michelek@hotmail.com

  • 1 year later...
bellabrit7 Rookie

hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

tiffjake Enthusiast
hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

Hi Bella, just wanted to let you know that thread is nearly a year old, so you might not get a reply from that person..You might want to Private Message them, by clicking on their name (celiac3270) on the left, and scrolling down to "send message" :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.