Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! So Confused About Ingredients


CeliacMom

Recommended Posts

CeliacMom Rookie

I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago.

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board, I am even more confused.

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free? Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage? How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term? (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats. I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Open Original Shared Link

Which one are you wondering about and why? :)

CeliacMom Rookie

I guess I am confused about the "vinegar" which I thought was okay.

This is what I found last night:

"Grey Poupon 1-800-622-4726 (Nabisco says that their white distilled vinegar source changes and may sometimes include the use of gluten grains)"

KaitiUSA Enthusiast

Yes, some vinegars are grain based but the gluten does not get through the distillation process. Distilled vinegar will be ok...it was thought to be bad before but it is pretty much agreed on that it is safe now.

Nabisco won't hide anything on labels though and will clearly indicate gluten.

lovegrov Collaborator

That's a CYA. Because distilled vinegar was on the possily bad list for so many years, and because some people with celiac still don't believe it's OK, some companies still warn about it. I ignore it.

richard

  • 2 weeks later...
Sophie's mom Newbie
I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago. 

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board,  I am even more confused.

 

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free?  Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage?  How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term?  (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats.  I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

<{POST_SNAPBACK}>

I, too, am feeling a little overwhelmed. I plan to start my 3 yr. old daughter on a "diagnostic/test" diet on Monday. Where/how can I get my hands on these lists?? Thanks for any help.

Lisa

Jnkmnky Collaborator

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

mstrain Rookie
Just ask for the Delphi/food list or the Silly Yak/restaurants list.  I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: .  Thank you!

<{POST_SNAPBACK}>

Hi celiac3270:

I think I asked for "the list" - sorry for not being clear! Could you please e-mail me both lists? Thank you so much!

michelek@hotmail.com

  • 1 year later...
bellabrit7 Rookie

hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

tiffjake Enthusiast
hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

Hi Bella, just wanted to let you know that thread is nearly a year old, so you might not get a reply from that person..You might want to Private Message them, by clicking on their name (celiac3270) on the left, and scrolling down to "send message" :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.