Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash


Kellietmac

Recommended Posts

Kellietmac Newbie

Can someone please tell me how long does it take this rash to go away after going gluten free, I have not yet been diagnosised with anything as I cant get an appointment with a dermitologist for three months but I have had a rash for eight weeks, two rounds

predisone and rash still not going away read about DH and my rash sounds like it could be that. I stopped all gluten foods two weeks ago and yet rash although nit as itchy wont go away. Someone please help I am so frustrated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Try a low-iodine diet with the gluten-free. If it's DH that should help reduce it.

It can take years to clear up DH without Dapsone (talk to your doc), bit iodine withdrawal is a good way to snuff out the fire.

For info on a low-iodine diet google "thyca". They have info and a cookbook.

rosetapper23 Explorer

Yes, definitely eliminate iodine! It can be found in seafood, iodized salt, dairy products, and asparagus. Once you eliminate BOTH gluten and iodine, you should feel/see a difference very soon if you do, in fact, have Dermatitis Herpetiformis. Good luck!

Kellietmac Newbie

Try a low-iodine diet with the gluten-free. If it's DH that should help reduce it.

It can take years to clear up DH without Dapsone (talk to your doc), bit iodine withdrawal is a good way to snuff out the fire.

For info on a low-iodine diet google "thyca". They have info and a cookbook.

Thank you for your advice I will look into reducing iodine. I have asked my dr for Dapsone to try it however she won't give it to me because I have not yet been diagnosis yet. I don't have an appt with the dermitologist until November and the allergist I saw was a jerk and told me other then a rash I appear to be in picture perfect health. He didn't seem to care to much.

pricklypear1971 Community Regular

Another thing, if it's DH make sure you moisturize with a gluten-free lotion. I like Vanicream. DH lesions get very dry and you must baby the skin while they heal. Dry skin is itchier, too.

Probably good advice for itchy skin, period.

Kellietmac Newbie

Thank you good to know

rosetapper23 Explorer

One thing you should know before seeing the dermatologist is that most dermatologists have absolutely NO idea how to biopsy for DH. Invariably, they'll biopsy a lesion itself, and that will result in a false-negative. You must insist that he/she biopsy the clear skin just adjacent to a lesion, NOT the lesion itself. You might try reading some of the articles on DH to see if you can print out a good one on the correct way to biopsy DH lesions so that you'll have something to back you up. Otherwise, you're likely to walk out of the visit with your dermatologist thinking that he's Dr. Jerk No. 2.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

    2. - MagsM replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

    3. - trents replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

    4. - MagsM replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

    5. - Scott Adams replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Damage after 13 years gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,109
    • Most Online (within 30 mins)
      7,748

    Betsyhoff
    Newest Member
    Betsyhoff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, so the term was being used loosely and informally, then.
    • MagsM
      Hi Trents, yes classic Alzheimer's is caused by plaque build up but the diagnosis of Alzheimer's often covers other types of cognitive decline including mild cognitive impairment, short term memory loss and vascular dementia which are all of the issues that my Mom has. She does not show any plaque build up on MRI. 
    • trents
      Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
    • MagsM
      Thank you all for your feedback. I did see the Consultant Otolaryngologist today and unfortunately she is not doing any research into potential functional immune or inflammatory mechanism that could be driving Ménière’s. My Mom was diagnosed with Meniere's at my age (58) and then did develop Alzheimer's in her 70's. The consultant mentioned that my Mom's Alzheimer's could have been triggered from the hearing loss due to the Ménière’s. She then went into worst case scenarios which freaked me out entirely (full hearing loss and cochlear implants)! Apparently it is very important to keep those neural pathways (hearing, balance vision etc.) fully functional to stave off potential brain disease like Alzheimer's. I really would like to figure this out and unfortunately do not have a good functional medic in Ireland who would help me in the diagnostic process.  Consultant today has put me on a betahistine 3x per day for the next 6 months. I am also thinking that I will go gluten free and ramp up the B-complex and Benfothiamine (already ordered). I am still trying to source the tetrahydrofurfuryl disulfide (TTFD). I'll see where I am in a few months, will also test the gut microbiome and see what those results look like.  Once again, I can't thank you all enough - your amazing knowledge and generous time and guidance is truly appreciated!!  
    • Scott Adams
      Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blunting and lymphocytosis raise valid concerns about ongoing low-level inflammation, cross-contamination, or even refractory celiac disease (though your normal antibodies make this less likely). It’s especially frustrating when your symptoms (nausea, pain) are dismissed with generic advice, and communication feels like a game of telephone with nurses. Switching to a more engaged GI is a great step—someone who’ll actually discuss your biopsy results, explore potential hidden gluten exposures (e.g., medications, shared kitchens), and investigate other culprits (like SIBO, motility issues, or food intolerances that often overlap with celiac). Hang in there—you’re advocating for yourself the right way, and your dedication deserves answers, not canned responses. Hope the new GI provides the clarity you need!
×
×
  • Create New...