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Biopsy Results Tomorrow

mmm1017

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mmm1017 Rookie
mmm1017
Posted

I had my bloodwork and my biopsy last Friday. I know that some GI doctors do the bloodwork first, but mine was pretty certain from my medical history that I was either celiac or gluten intolerant. While she was doing the EGD, she took pictures of the duodenal bulb (with a cracked-earth appearance) and the the duodenum (scalloping). She said it looked like celiac to her but we would wait for the biopsy results. She was also concerned about food residue in the gastric body, fundus, and antrum; so, she did a biopsy there too. I'm supposed to call tomorrow for the results. If the genetic test also comes back positive, my children have to have that done as well. Our allergy doctor is concerned that my 8 year old is already showing signs of celiac and my baby is not gaining weight the way she should. Hopefully, no matter what, my kids can avoid all of this. What are the chances that the appearance of the duodenum is from something else?

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mushroom Proficient
mushroom
Posted

Possible, probably not probable, is my best guess.

mmm1017 Rookie
mmm1017
Posted
  • Author

Possible, probably not probable, is my best guess.

On the one hand, I hope it is negative for my children's sake. On the other hand, it would explain my medical history. Milk allergy (from infancy), IBS (diagnosed as a teen), migraines (since childhood), fibromyalgia (diagnosed 3 years ago), hypothyroid, and on and on. It would be wonderful for it all to go away by simply changing my diet. Well, maybe not "simply", but you catch my drift. An end to the pain and fatigue...

mmm1017 Rookie
mmm1017
Posted
  • Author

On the one hand, I hope it is negative for my children's sake. On the other hand, it would explain my medical history. Milk allergy (from infancy), IBS (diagnosed as a teen), migraines (since childhood), fibromyalgia (diagnosed 3 years ago), hypothyroid, and on and on. It would be wonderful for it all to go away by simply changing my diet. Well, maybe not "simply", but you catch my drift. An end to the pain and fatigue...

And they were all positive for celiac. What now?

mushroom Proficient
mushroom
Posted

And they were all positive for celiac. What now?

Welcome to the club - you will have to learn the secret handshake :rolleyes:

The next step is to have your kids tested for celiac too, I would think, since it is so genetically based. Also the genetic testing because they may not test positive for celiac right now so that would show the potential.

You must stop eating gluten now, of course, but the results of the children's testing and a family meeting will be necessary to decide how gluten free your house is going to be, whether your husband would be onboard with not eating gluten at home, etc.,etc.

Fire away with any specific questions you have.

Twinklestars Contributor
Twinklestars
Posted

I'm glad you have answers for your ongoing medical problems. Gluten free straight away for you, but your kids will need to stay on gluten until they're finished with their testing. I think it's important to get them tested, so you know for sure whether they're celiac. I would imagine a positive diagnosis would make it easier to explain to their school, etc. Good luck :)

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      Accuracy of testing concerns

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    • trents
      Accuracy of testing concerns

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