Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Feeling Cold


Katrala

Recommended Posts

Skylark Collaborator

Why is the absorption sub-par?

Um... We don't absorb ANYTHING well, remember? Inflammation is bad for absorption, villous atrophy even worse.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Where I live it is winter for more than six months of the year. And I mean COLD winter, as in -40C OR F for ages on end. Tires on our vehicles are square; we must plug in our vehicles just so they will start. And our blizzards on the prairies are fierce with windchills reaching -65F at times. Nasty stuff. One of the many reasons we will be moving to Croatia.

Anyway, I am HEAT intolerant. Can't stand heat. It completely exhausts and criples me. So, when we do move we will be coming back to Alberta for summmers as they are not as hot and humid for as long as in Croatia. My ideal temperature is about 60-65F. Not asking for much, am I? ;)

Katrala Contributor

Um... We don't absorb ANYTHING well, remember? Inflammation is bad for absorption, villous atrophy even worse.

Well, right, but once the villi are healed, I mean. Does the relationship between the two return to non-celiac levels?

Skylark Collaborator

Well, right, but once the villi are healed, I mean. Does the relationship between the two return to non-celiac levels?

Sorry, I totally misunderstood you! Once you start absorbing things like iron and calcium, you'll be absorbing selenium and iodine too. It can help to be sure you're getting the US RDA of both, but not a lot more. The absorption improvement part of why people's thyroid function tends to improve gluten-free. Less inflammation in the thyroid helps too.

Unfortunately, you can be unlucky like me and develop thyroid autoimmunity that does not resolve off gluten. My thyroid just keeps getting worse and worse. :(

And then there's the fluoride in water problem. Fluoride is a little thyrotoxic plus the thyroid gland mistakes it for iodine. Fluoride is effective enough at slowing thyroid function that it used to be used as a treatment for Graves' disease (autoimmune hyperthyroidism). Is it any wonder we're all slightly hypothyroid and cold??? If you're in an area with fluoridated water it is very important to be sure you're getting the US RDA of iodine for your thyroid to work right. You can lower the amount of fluoride in your diet by drinking and cooking with RO purified water, eating organic produce, drinking organic wine, and avoiding black or green tea and choosing herbal teas instead.

If you might be hypothyroid, you also want to avoid certain foods that slow thyroid function. Avoid large amounts of soy, raw peanuts, and raw cruciferous veggies (brussels sprouts, broccoli, cabbage, kale, turnips, etc.). A little soy is OK but don't make tofu your main protein, and go for cooked broccoli over cole slaw with raw cabbage.

lcarter Contributor

I agree with the others who think you could be hypothyroid because of feeling cold and the lower blood pressure, both key signs of hypothyroid [low thyroid hormone level]. Thyroid problems are a likely companion to celiac disease. Most doctors only do a TSH [Thyroid Stimulating Hormone] screening which really doesn't tell the whole story. In other words, the TSH is only the hormone which stimulates the thyroid to produce thyroid hormone - so, it's not a direct test. Besides that, the American Endocrinology Association, a few years ago, changed the range for "normal" from a high reading of 5.0 to a new high of only 3.0. Many labs are still using the 5.0 range which leaves a lot of folks with symptoms without a diagnosis.

For example, in my own situation, if I hadn't been able to eventually talk my general family doctor into running the whole thyroid panels [TSH, T4, Free T4, and Free T3 + the antibody panel of TPOAb and Anti-TPO] I would have never found out that I am hypothyroid and have autoimmune Hasimoto's thyroiditis. My TSH hovered between 4.7 to 5.1 for a few years there before I finally got it fully checked out. All that time I was having various symptoms, including joint pain. Three days after starting a low dose of thyroid medication, the joint pain totally disappeared and has never returned! That was 3 years ago. When a follow up sonogram was done after being on medication for a while, my thyroid had shrunk back down to a normal size. My family doctor had been manually feeling my neck and kept telling me that the thyroid felt normal. Only after the initial scan did we know it was enlarged and sitting at an angle that was not easily manually felt. Needless to say, you know your own body best. If you think there could be a problem, insist on the correct testing. And, if your doctor won't go along with it, find a doctor who will.

Unipeg05 Newbie

Wow, I have always wondered why I was the only one in the house freezing their butt off. I cannot tolerate the cold at all. My hands and feet are the worst, it seems to get right into your bones and makes it impossible to warm up.

jenbunni87 Newbie

Interesting because I am always freezing freaking cold and then when I get nauseated I get even colder


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Melody1 Newbie

I have trouble regulating body temp either way when I'm glutened. I'm hot then cold - sometimes within just a few minutes.

CaraLouise Explorer

I totally agree with everyone, I have Raynauds and am always cold! One time I was at a science museum and held up my hands to the heat sensor and they were black! Scary!!!! But a gluten free diet does help and bundling up!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,761
    • Most Online (within 30 mins)
      7,748

    Manuel
    Newest Member
    Manuel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.