Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Frustrated


allergyprone

Recommended Posts

allergyprone Contributor

ok so lately i've been having some strange symptoms <_< (futigue, frequent urination, increased hunger and thirstyness...)so i go to the doctor, thinking it could be type 1 diabetes (grandmother had it) I say i have celiac and don't think she has a clue what it is, but she does several tests (glocose levels, kestone levels, mono spot test, urinary infection test, and 1 other one) all negative, she has me do a thyroid blood test (results aren't in yet) and she is haveing me come in for a fasting glocose test on monday. I am going crazy i sleep 10-12 hours a day/night and am still tired. i hope this isn't cc because i make all of my food and pretty much only eat canned, fresh or frozen fruits, veggies, and meat, and rice. It took my old drs (4 of them) 16 years to figure out i have celiac disease and if it takes that long to figure this out i might as well just give up now.

Also having to be gluten-free is starting to drive me insaine, i just started college and the food service couldn't accomodate :angry: but they could let me be in an on campus appartment. i had to go through disabilities so i ended up without a roommate because there are only 7 people on campus w/celiac disease and if i get a roommate they have to have celiac disease too (what the dr note says) so i'm a freshmen in the married student and international student housing, from out of state, having to cook all of my own food. I didn't think it was that bad until i started to meet people, because bonding occurs where...the caffeteria...at my school you have to pay to get in because it is a buffett and because i make all of my own food i don't have a meal plan and don't want to pay to hang out with my friends and not beable to eat there.

sorry about this rant its long and boring and all it is, is complaining

but if you do make it through thank you for reading it and commiting (if you do) :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

you're wrong, bonding does not always occur in the cafiteria. There are other ways: clubs, class, volenteer work, etc.

Regardless, you could still go into the cafiteria if it bothers you so much, just not eat anything or bring something you made.

You are very lucy to be able to get a kitchen (even though you have to share it), because personally i wouldn't trust staff with my food.

rosetapper23 Explorer

I'm sorry to hear that you're having these troubles, and I do understand about the problems of socializing in college without the benefit of going to the cafeteria. My daughter's college was the same way--no admittance to the cafeteria unless you've paid for a plan. I would like to see colleges handle this differently. Have you considered writing to the college dean or president pointing out that this is disparate treatment of a person with a disability? It's really not fair to separate you from your college peers, and perhaps there's a way that they could accommodate a request to simply bring your own food and sit with friends in the cafeteria. Chances are good that they are unaware of how their system discriminates against people with disabilities.

Regarding your symptoms, I can see why you suspected Diabetes I; however, it IS possible that you could have a thyroid condition, so I'm glad your doctor ordered that test, as well. You may actually be having a problem with an up-and-down glucose level because of your adjusting to the gluten-free diet. A lot of college kids tend to grab fruit when they're in a hurry or going from class to class. The vitamins and antioxidants in fruit are good, but if you don't also eat protein and fat with it, you can spike your glucose level. The key to maintaining your glucose at a steady level is to always eat some protein and fat with your carbs. Do you have a Trader Joe's nearby? They sell a precooked bacon without nitrites or nitrates that can be microwaved in seconds. When I eat something that is high in carbs, I simply cook up some bacon and add it to my meal. This way of eating also stabilizes weight.

allergyprone Contributor

Thanks for all of your replies, got the test results back...everything is normal <_< I know I should be happy, but I hate having symptoms that i don't know the cause of. I know I'm not getting cc because I have all gluten-free dishes, cookware, all food is made and purchased by me (gluten-free of course) and these aren't my normal symptoms. I really love this forum, everyone here understands where I'm comming from, i find it so hard to talk about celiac issues with people who don't have it (only one in family) so coming here and letting it out makes me feel so much better. I really wish that there was a celiac or gluten free club on my campus, maybe I'll start one...does anyone know how to do that? well anyways thanks for your replies

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...