Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hydrocortisone Cream


Kquad

Recommended Posts

Kquad Apprentice

I was diagnosed with celiac in march. Almost immediately, I also cam down with bronchitis and was on prednisone for a month. When I came off, I developed what I thought was hot tub rash ( folliculitis) around my trunk from the nipple line to the belt line. I then got glutened an became very sick, found I had gluten ataxia ( MRI showed cerebellar damage). I could not work, so I put myself on steroids (which really helped the ataxia) and the rash went away around them. I am now coming off the steroid ( 5mg a day) and the rash is back. It itches moderately ( but I am still on steroids) has very small acne like look on some some are just red. I am trying cortisone cream on one area and it seems to be helping. I can not be sure it is DH and I am tired of seeing doctors. Does cortisone cream help anyone?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Yes and no.

It made the lesions smaller and dryer but it seemed to interfere with healing. Almost like tgey were in a frozen state.

If you want to test if it's DH, go on a low-iodine diet. That healed mine in 2 weeks when nothing else would touch it.

Also, prednisone is nasty stuff. You may be chasing your tail for a while as your body adjusts.

Kquad Apprentice

Yes and no.

It made the lesions smaller and dryer but it seemed to interfere with healing. Almost like tgey were in a frozen state.

If you want to test if it's DH, go on a low-iodine diet. That healed mine in 2 weeks when nothing else would touch it.

Also, prednisone is nasty stuff. You may be chasing your tail for a while as your body adjusts.

Thanks, it does look like some of the early pics of DH and some are starting to blister. I will try the low iodine. Is there any symptom of celiac I have missed? I do not want any symptom to feel left out. I am so turned off to doctors now, I just can't see another.

eatmeat4good Enthusiast

I have used cortisone cream on my lesions and it helps with the pain. But as PricklyPear says it doesn't help the healing.

I was on Prednisone for a long time and I did flare with my lesions when I came off of it. Avoiding iodine and gluten very strictly is what helps. Any little mistake and the lesions flare.

Walgreens Pain Reliving Ointment is Benzocaine and it takes the sting out temporarily but does nothing for the healing.

I've heard moist tea bags applied can help too.

And there is a Cromolyn cream that people with chronic hives use to help with healing. I haven't tried it, but some say it helps dry up the lesions. It is made using Nasalcrom (over the counter) and a cream base. I am going to try it on my most recent outbreak from a glutening last week.

Open Original Shared Link

Even though the conditions are not the same, I have found this site helpful information and avoiding histamine foods can sometimes help as well. The Cromolyn recipe is on this site if you want to try it to dry the lesions. May not work, but we gotta try.

Kquad Apprentice

Thanks, Cromolyn is an awesome mast cell stabilizer. I will try it if needed. As I am not off steroids yet, the itching is tolerable. Is there a place to get info on avoiding iodine, beside being careful with table salt?

eatmeat4good Enthusiast

Yes, you can google low iodine diets.

There are many.

It is used temporarily by people who are going to have their thyroid radiated with radioactive iodine.

But it is perfect for the temporary limiting of iodine like those of us with DH need to do.

Here is a good one.

Open Original Shared Link

Kquad Apprentice

Yes, you can google low iodine diets.

There are many.

It is used temporarily by people who are going to have their thyroid radiated with radioactive iodine.

But it is perfect for the temporary limiting of iodine like those of us with DH need to do.

Here is a good one.

Open Original Shared Link

Thanks, reading as I am eating a tunafish sandwich. Avoid fish. Starting next meal and the areas not covered with cortisone are really starting to itch!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Thanks, reading as I am eating a tunafish sandwich. Avoid fish. Starting next meal and the areas not covered with cortisone are really starting to itch!

I read about iodine as I was cooking shrimp etoufee. I said a few nasty things about my ancestors at that point.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.