Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Interesting Doctor Appt

AmandaD

By AmandaD
in Coping with Celiac Disease

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

Hi guys - I want your opinion. :D

I'm 35 and when in for my good old regular physical (I see a gastro yearly who just checks to make sure I'm following my diet and usually runs vitamin d, diabetes and thyroid checks). My general practitioner said "Now with Celiac you can eat rice, yes? Milk?" And then she mentioned that she wondered if I should be followed up with a COLONOSCOPY because celiac can cause colon cancer.

I think I was sort of stupefied. I let her know that I see my gastroenterologist yearly and the last time I saw her she said I didn't need to come in until October of 2012 to say HI.

So I called my gastro doc today and she said she didn't feel I needed a colonoscopy or anything like that - that I was doing good and that I need to see her again in October of 2012.

Am I crazy or is my general practitioner not understanding celiac? Help.

(P.S. When I was first diagnosed in 2005 they did a sigmoidoscopy, TTG test and bloodwork, then an endoscopy. The sigmoidoscopy showed nothing serious - a noncancerous little polyp that was no big deal; the bloodwork showed celiac and the endoscopy showed Marsh II changes consistent with Celiac)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Your doctor seems about as knowledgeable as your average doctor.

Hey, maybe that's why it's so hard to get a celiac dx, a lot don't know what they're talking about????

Don't feel bad, I had a "thyroid" doctor tell me Armour was a bovine derivative.

mushroom Proficient
mushroom
Posted

Well, not to be a worrywart, but if you are prone to developing polyps, and we do know that noncancerous can become precancerous and then can become tumors, I think it would be prudent to get a colonoscopy done because they can reach farther than a sigmoidoscopy and potentially prevent any problems down the line. I would discuss it with my GI.

AmandaD Community Regular
AmandaD
Posted
  • Author

To be clear it wasn't a true polyp, it was a small inflammatory growth from infection. Sorry if I wasn't clear.

Gemini Experienced
Gemini
Posted

Hi guys - I want your opinion. :D

I'm 35 and when in for my good old regular physical (I see a gastro yearly who just checks to make sure I'm following my diet and usually runs vitamin d, diabetes and thyroid checks). My general practitioner said "Now with Celiac you can eat rice, yes? Milk?" And then she mentioned that she wondered if I should be followed up with a COLONOSCOPY because celiac can cause colon cancer.

I think I was sort of stupefied. I let her know that I see my gastroenterologist yearly and the last time I saw her she said I didn't need to come in until October of 2012 to say HI.

So I called my gastro doc today and she said she didn't feel I needed a colonoscopy or anything like that - that I was doing good and that I need to see her again in October of 2012.

Am I crazy or is my general practitioner not understanding celiac? Help.

(P.S. When I was first diagnosed in 2005 they did a sigmoidoscopy, TTG test and bloodwork, then an endoscopy. The sigmoidoscopy showed nothing serious - a noncancerous little polyp that was no big deal; the bloodwork showed celiac and the endoscopy showed Marsh II changes consistent with Celiac)

I think if you have undiagnosed Celiac for a very long time and don't know you have it, your intestinal tract can become inflamed all the way down.

Inflammation in the body is a big factor in some cancers so maybe, just maybe, if you never find out you have celiac disease or are diagnosed and continue to eat gluten, you may end up with a problem. If you follow a strict gluten-free diet and heal well, have no strong family history of colon cancer and there is no blood in your stool, then don't worry about it. Doctors are too pushy for colonoscopies these days because they make good money from doing them. Have your doctor do an occult stool test to see if there is any blood and if not, there should be no reason to do one.

I am 52 and have healed really well. I have never had a colonoscopy and don't plan on having one unless I fail one of the lesser tests, as mentioned above. My family are blessed in that we have little to no cancer, going back many generations, on both sides. We have a boatload of autoimmune issues but no cancer. You are young....I would follow your GI docs advice.

StephanieL Enthusiast
StephanieL
Posted

I thought Celiac did increase your risk of colon cancer?

AmandaD Community Regular
AmandaD
Posted
  • Author

No. The most recent research says it does not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

No. The most recent research says it does not.

Thanks! Good to know!

AmandaD Community Regular
AmandaD
Posted
  • Author

Here ya go: https://www.celiac.com/articles/22452/1/Celiac-Disease-Carries-No-Higher-Risk-of-Colorectal-Cancer/Page1.html

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748
    maltawildcat
    Newest Member
    maltawildcat
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanCel
      Celiac getting dentures

      By NanCel · Posted

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.