Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results


kim99

Recommended Posts

kim99 Newbie

This is my first post, I hope someone out here can help me. I went to the Dr. because I was I losing weight and breaking out in hives. She tested me for different allergies and celiac. The nurse called me and told me It's possible you have celiac, you need to go see a GI Dr. Can somebody help me understand the results?

Gliadin ABY, IGA, IGG

Gliadin antiboldy IgA Value 1.4 Range 0.0-4.9U/ml

Gliadin Antibody IgG Value 1.6 Range 0.0-14.9 U/ml

Tissue Tranglu ABy Profile

Tissue Transglutaminase

Aby IgA Value 38.6 Range 0-3.9 U/ml

Tissue Transglutaminase

Aby IgG Value 1.3 Range 0-5.9 U/ml

Endomysial antibody S (IGA) Positive

Thank you,

Kim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



drummerswife Newbie

Im sorry. I haven't a clue. I've been on a celiac diet for a long time now without ever taking the test until recently.

I found out I was pregnant but when I told my OBGYN that I had celiac they said they wouldnt see me till I had test that confirmed it. So, I went to my doc and he ordered a blood test for me. Only, it came back negative. When I asked if my non-gluten diet could have affected it they said no.

So, now I'm at a lost. My mom, sister and I all feel better on a gluten-free diet. W/o it we get a rash, abdominal pain, and fevers. I also have anemia.

I dont want to go back on a gluten diet and I'm worried that my OBGYN wont take me serious now and give me medicine or something that could harm the baby.

I don't know what to think or to tell you. Sorry.

JoshB Apprentice

Sorry Kim, that's a positive result. On the plus side now you know, and you should start feeling a lot better.

Your GI may want to do an endoscopy to determine the severity of damage. You might want to do that depending on your plans for the future and your insurance situation. You'll have to eat gluten free from now on no matter what, but a GI may compare an endoscopy now with one from a year from now to make sure that you're improving. Some people need a little help from steroids, and in a tiny number of cases a more serious version of celiac disease develops, so they like to watch for that.

You need to go get your vitamins checked by blood test. Critically, D, Calcium, and B 6 and 12. If you have had symptoms for more than a year or two, and/or have any risks for osteoporosis, then you should probably also have a dexa scan. It might be a good idea to just assume you're low on Calcium and D until you get the scan, and start taking supplements. Blood levels can be pretty high even when your bones are being depleted.

JoshB Apprentice

Im sorry. I haven't a clue. I've been on a celiac diet for a long time now without ever taking the test until recently.

I found out I was pregnant but when I told my OBGYN that I had celiac they said they wouldnt see me till I had test that confirmed it. So, I went to my doc and he ordered a blood test for me. Only, it came back negative. When I asked if my non-gluten diet could have affected it they said no.

So, now I'm at a lost. My mom, sister and I all feel better on a gluten-free diet. W/o it we get a rash, abdominal pain, and fevers. I also have anemia.

I dont want to go back on a gluten diet and I'm worried that my OBGYN wont take me serious now and give me medicine or something that could harm the baby.

I don't know what to think or to tell you. Sorry.

As long as you're eating diversely and maybe taking a mutli-vitamin, being gluten free should not harm your baby. It certainly seems unwise to do a gluten challenge while pregnant, and your diet would absolutely effect the blood test. Frankly, your doctor saying otherwise is a very good sign that you should not take his advice for anything having to do with celiac disease. I would consider finding another doctor in general, as he is obviously willing to advise you in areas where he has no knowledge.

GlutenFreeManna Rising Star

This is my first post, I hope someone out here can help me. I went to the Dr. because I was I losing weight and breaking out in hives. She tested me for different allergies and celiac. The nurse called me and told me It's possible you have celiac, you need to go see a GI Dr. Can somebody help me understand the results?

Gliadin ABY, IGA, IGG

Gliadin antiboldy IgA Value 1.4 Range 0.0-4.9U/ml

Gliadin Antibody IgG Value 1.6 Range 0.0-14.9 U/ml

Tissue Tranglu ABy Profile

Tissue Transglutaminase

Aby IgA Value 38.6 Range 0-3.9 U/ml

Tissue Transglutaminase

Aby IgG Value 1.3 Range 0-5.9 U/ml

Endomysial antibody S (IGA) Positive

Thank you,

Kim

It looks like your TTG and EMA were positive. Those are the more specific tests and very accurate when positive. Don't go gluten free until you see your GI dr as he may want to do an endoscopy to confirm.

GlutenFreeManna Rising Star

Im sorry. I haven't a clue. I've been on a celiac diet for a long time now without ever taking the test until recently.

I found out I was pregnant but when I told my OBGYN that I had celiac they said they wouldnt see me till I had test that confirmed it. So, I went to my doc and he ordered a blood test for me. Only, it came back negative. When I asked if my non-gluten diet could have affected it they said no.

So, now I'm at a lost. My mom, sister and I all feel better on a gluten-free diet. W/o it we get a rash, abdominal pain, and fevers. I also have anemia.

I dont want to go back on a gluten diet and I'm worried that my OBGYN wont take me serious now and give me medicine or something that could harm the baby.

I don't know what to think or to tell you. Sorry.

Welcome to the board. Your drs were ignorant about celiac testing. You must be on gluten in order to be tested or the test will be negative. However, now that you are pregnant you should not go back to eating gluten. If you are celiac it could harm the baby. If your OBGYN is not respecting your wishes to be gluten-free then find a new one. There should not be any medcine you need to take while pregnant unless you are high risk or have other health issues. For over the counter meds just google the name and gluten free and you shoudl be able to find out if it is gluten-free. And of course make sur eyour pre-natal vitamins are gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

    3. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.