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Horrible Insomnia Rant (With A Question)


HopefulMama23

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love2travel Mentor

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Hmmm....interesting. I see my doctor next week so will ask him about it.


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HopefulMama23 Explorer

Am curious too which homeopathics you tried for insomnia. There are a variety given for different causes of insomnia. As I recall I remember one that is good in cases of "fear of never falling asleep." Besides caffeine, mint products will make homeopathics not work--and probably other strong herbs as well.

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

jerseyangel Proficient

I found a homeopathic remedy called "Calming" by Heel. I use it 3 or 4 times a day and have been sleeping better. I was having terrible insomnia, sometimes not sleeping at all or for just a couple of hours. This works better than "Calms Forte" for me and is completely gluten-free.

pricklypear1971 Community Regular

Do you need a specific test for Hashimoto's or is the TSH bloodwork the required indicator? Had my physical and bloodwork done in August and was told my thyroid was "normal".

It's specific, called TPO.

pricklypear1971 Community Regular

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Uhm, you need a specific test for this called TPO. I've never heard of it being diagnosed symptomatically. Perhaps it can be, but never heard of it.

love2travel Mentor

It's specific, called TPO.

Thank you. I will request it. I would do anything to conquer this insomnia once and for all. Perhaps this is it...

Takala Enthusiast

I sleep when I am tired, instead of trying to sleep whenever everybody else is. Heck, the **** dogs sleep all day, snore snore snore. The cat is asleep now. I've seen the horses go down for naps mid morning to mid afternoon after they were up grazing at night, why fight the trend ? My spouse has to get up really early sometimes to talk to people in different time zones, then he's down for the count by 4pm and sleepy. It's a hundred degrees out now in the sun, I'd be out like a lightbulb if it were not for the A/C ; ) Yet the myth persists we should get up at 6 am fresh and perky. pffffffffffffffffffffffttttttttttttttttt


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YoloGx Rookie

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

Do let me know how it goes. I agree, homeopathy is both very helpful as well as interesting. Just got a book on it that is helping me a lot.

Meanwhile I know what its like not being able to get to sleep. Have had that problem for years. Everything seemed to conspire to create it--the gluten and salicylate sensitivity as well as old injuries to my sacrum and L- 5 vertebrae with sciatica at night not to speak of too much drama going on in my life as an infant.

So like the last responder I eventually learned to just go to bed really late and get up late and do what I do in the wee hours of the morning and call it "normal".

But now I am trying to break the cycle. I do think that hormones are a factor, as well as habits, fears etc. pure and simple. Or should I say, not so simple??

At least the homeopathics are making it so my body isn't jerking around at night when I lie down. A huge improvement. Hypericum perforatum thus is helping a lot... Next I also want to try out some cell salts since I am very low in minerals even though I have been taking a ton of them for years.

Skylark Collaborator

Skylark, you're right. I see a new endo Monday and I'm prepared to push. Hard.

Good luck! I know how awful the insomnia is because my thyroid went a little bonkers this spring.

There are actually three autoimmune thyroid antibodies. TPO is the most common, but you should also be tested for anti-thyroglobulin, and possibly TSI. TSI is the Graves' disease test.

Also, "normal" for TSH should be between 0.5 and 2.5. It used to be that below 5.0 was considered normal, and some ignorant doctors still use the old range but most people with TSH at 5.0 feel pretty sick.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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