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Confused And Frustrated

Regameleca

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Regameleca Rookie
Regameleca
Posted

Hi guys, wondering if anyone could offer any advice or insight?

Basically I've been eating gluten free now for a couple weeks, I went to Italy and had a gluten binge 2 weeks ago but was gluten-free before that. I wanted to reintroduce to see if I was indeed intolerant(which I'm now sure I am) anyway before I went to Italy I felt fantastic but since I've returned I've just been getting worse and worse everyday! Now I'm getting stomach cramps and bloating every night with both D and C and I have this terrible patchy eczema like rash all over my legs, which just isn't getting better. Getting headaches and dizzy too. Is it normal to continue to react like this? Shouldn't I start to feel better, not worse? I feel like I'm getting glutened everyday, but I'm being so cautious and taking no risks at all... I have been making gluten free cakes, is it possible these are too much right now?

Thanks guys, my dr is none too helpful, he had to google celiacs disease when I asked to be tested! Ugh, at least I got him to test me. Any advice you can tell me would be grand:)

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Marilyn R Community Regular
Marilyn R
Posted

Hi guys, wondering if anyone could offer any advice or insight?

Basically I've been eating gluten free now for a couple weeks, I went to Italy and had a gluten binge 2 weeks ago but was gluten-free before that. I wanted to reintroduce to see if I was indeed intolerant(which I'm now sure I am) anyway before I went to Italy I felt fantastic but since I've returned I've just been getting worse and worse everyday! Now I'm getting stomach cramps and bloating every night with both D and C and I have this terrible patchy eczema like rash all over my legs, which just isn't getting better. Getting headaches and dizzy too. Is it normal to continue to react like this? Shouldn't I start to feel better, not worse? I feel like I'm getting glutened everyday, but I'm being so cautious and taking no risks at all... I have been making gluten free cakes, is it possible these are too much right now?

My guess is that you need to give your poor gut and autoimmune system a rest. You just kicked it into ovedrive. So I'd stick with safe stuff (real, unprocessed food) for awhile and knock alternate grains and additives like guar gum etc off for awhile. I'm not even sure I'd drink coffee. Sage tea is good when you're healing...

Regameleca Rookie
Regameleca
Posted
  • Author

Thanks for that! Top tip, I just so happened to have a big bag of sage tea from turkey in my cupboard. I've had 2 cups today thus far and my tummy feels more soothed already!

Also when healing does exercise get really tough? I cycle to work and back everyday and recently it's become very hard. Annoying!!!

Thanks again!

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    • trents
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      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
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      Could this be a new intolerance

      By trents · Posted

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      Could this be a new intolerance

      By Rogol72 · Posted

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      By Scott Adams · Posted

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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