Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Distressing Poops.


gatheringroses

Recommended Posts

gatheringroses Rookie

Hello, all!

I am a 22 year old woman in Toronto.

I've been sick my whole life until June when a fellow celiac told me very polietly to stop eating gluten immediatly. Almost all of my chronic health problems (anxiety, depression, chronic fatigue, almost disabling insomnia) went away within a week. I was thrilled.

I've been doing SO MUCH better - I finally realized what feeling healthy is supposed to be like!

I've seen a natropath who suggested that I go on a very strict diet, and figure out if I have any additional allergies. I haven't been able to start it yet (I am a vegetarian, and just starting a new school year - I want things to settle down before I start this diet that will leave me eating only lentils, some veggies, and rice for weeks). However, I have been taking note of what I eat, and if I feel sick after.

However, there seems to be no pattern. For instance, I eat the same thing for breakfast every day (2 small gluten-free soy meat patties, a slice of gluten free toast with some soy butter), and sometimes it makes me sick. Sometimes, it doesn't.

Sometimes, even eating Quinoa will make me feel sick. Sometimes, it won't.

And, I've been having disturbing poops. They're light coloured, loose, and frequent. This has been happening for at least a week.

I want to talk to my doctor, of course, about it. However, since it took 22 years, 2134 tests for Mono, and a polite stranger (rather than a doctor) to figure out what is going on, I thought I'd ask you guys for your thoughts first.

Has anyone else experienced this? Any thoughts on what is going on?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Is it possible that you could also be having problems with dairy?

pricklypear1971 Community Regular

Or soy?

Read the forum. Many people here have temporary or permanent issues with common (or uncommon) foods after going gluten-free.

Keep your diary, try an elimination diet... See what pops up. Symptoms don't have to be immediate to be linked.

ECUmom3 Explorer

Is it possible that you could also be having problems with dairy?

Or maybe the soy.

gatheringroses Rookie

Thanks all for your replies!

I am going to cut out dairy and soy for a bit.... which will leave me at a complete loss as to what to eat. But, I want to feel better!

The only thing I find confusing is that I don't really see any pattern as to when I get sick, and when I don't.

I am going to read more of the posts here. Thanks, all, for replying!

dilettantesteph Collaborator

Another possibility to consider. Some of us are sensitive to very low levels of gluten and need to stay away from processed foods and most grains (due to shared harvesting, etc. equipment).

gatheringroses Rookie

Another possibility to consider. Some of us are sensitive to very low levels of gluten and need to stay away from processed foods and most grains (due to shared harvesting, etc. equipment).

Thanks for the tip... I am not sure how allergic I am to gluten yet... so, I guess I should be extra careful until I know what is going on.

For starters, I've stopped going out for food entirely, and only shopping at an organic grocery store (with a huge section for gluten free items).

I am reading more into Leaky Gut.

I am curious as to how long it took people to be able to tolerate foods like soy and dairy again after they stopped eating wheat.

I am going to read back on the forms to see if there are any similar posts, but if you have similar experiences, I'd love to hear them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.