Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Graves Disease


KaitiUSA

Recommended Posts

KaitiUSA Enthusiast

For those of you that know I was dignosed with Graves Disease(hyperthyroid) in March of this year because my levels were slightly off. It has been off since before I was diagnosed with celiac. Anyway, it was in beginning stages so I did not need treatment until levels increased.

Well I went in this month for a checkup to see where levels were and levels went back to completely normal. This surprised us all but obviously the gluten free diet allowed in not to get worse before (as it was off before I was diagnosed and then stabalized when I got on the diet)and now helped get the levels back to normal.

My doctor is still convinced that I have Graves Disease in beginning stages and she thinks that it will show dramatically in one of my blood tests sooner or later so they will check it every 3 months or so.

For now, I will just be happy not having to take drugs...I do think I have a minor thyroid issue still because I do have a few minor symptoms but way better then before I will say.

I just wanted to share that the diet can make a difference in other disorders that may have been caused by celiac. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

YAY!!!!! So happy for you Kaiti!!!!!

SueC Explorer

Hi Kaiti,

That is very good news!! I treat alot of people with Graves Disease. I work in Nuclear Medicine and we do alot of the diagnosing (along with the bloodwork) and radioactive Iodine thearapies for Graves. It is never good to have it but it is treatable for those who do. I am glad your levels normalized and hopefully they will stay that way. Just keep a close eye on your TSH. If it starts to drop you may want to have a thyroid scan and uptake done.

Sue

Guest mlwaller

Congrats!! That is fabulous. My mother had her thyroid removed years ago after struggling with graves disease, I wish we would have found out sooner that we had celiac and she could have seen the effect it might have had. My sister was also just dx'd with graves this spring, after giving birth. I have finally convinced her to get a blood test for celiac disease after sharing articles from this board about the connection. I will tell her about your update! Hope everything stays good for ya! Best wishes,

KaitiUSA Enthusiast
Hi Kaiti,

That is very good news!! I treat alot of people with Graves Disease. I work in Nuclear Medicine and we do alot of the diagnosing (along with the bloodwork) and radioactive Iodine thearapies for Graves. It is never good to have it but it is treatable for those who do. I am glad your levels normalized and hopefully they will stay that way. Just keep a close eye on your TSH. If it starts to drop you may want to have a thyroid scan and uptake done.

Sue

<{POST_SNAPBACK}>

Thanks everyone :D

Sue-

I will definitely be keeping an eye on it. The TSH was down pretty low for a while and then once I got on the diet it stabalized and never got worse. The TSH this time around went up but its still on the lower side of normal(just barely normal..but nevertheless it still went up :D ) so it is something to for sure keep an eye on especially since I still have minor symptoms of it.

Thanks for the advice on it...its good to know people from this board who are familiar with it and treatment.

I know it's treatable but I would much rather have it treated this way then have to get drugs or anything radioactive but hey you got to do what you got to do to keep yourself healthy so if it comes to that I will get it treated after looking at options

SueC Explorer

Hopefully things will just keep getting better on their own! :) I agree with you that I would much rather treat without drugs of any kind but it is good to know there are some treatments out there. Keep us posted! and if you need any info on the treatments I would be glad to help (hopefully you won't :) )

Sue

KaitiUSA Enthusiast
Hopefully things will just keep getting better on their own! :)  I agree with you that I would much rather treat without drugs of any kind but it is good to know there are some treatments out there. Keep us posted! and if you need any info on the treatments I would be glad to help (hopefully you won't  :) )

Sue

<{POST_SNAPBACK}>

Thanks so much Sue. I will definitely be in contact with you about that if things take that direction. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi Katie,

Actually I was HypOthyriod before I got diagnosed for Celiacs. It also cleared up by itself in about 6-9 months after going gluten-free. I actually lost about 25 pounds effortlessly. My doctor explained that because I was so nutrient deffient that my body thought I was starving, so it shut down and treid to hang onto all the fat it could. I ended up at the same weight I was before I started getting sick about 120-125.

It's funny...it seems like a reasonable expaination, but then why do celiacs also go hypErthyroid?

Our bodies are amazing, God has his way of challenging each one of us in our own way. I am thankful also to not have to have gone on meds, and am thankful you are off of them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      High TTG-IgG and Normal TTG-IgA

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,839
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.