Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Gluten Intolerance And Ibs :(


BarbieGirl

Recommended Posts

BarbieGirl Newbie

I've been sick the past three years and last year my mom came to the conclusion she has gluten intolerance, on top of her IBS. I'm only fifteen now and I've decided that what I have is likely gluten intolerance and IBS. I've found unsafe food lists for both of those and through trial and error, the hard way, figured out that all ingredients/foods on those lists make me sick. About twenty minutes after I consume the food. I'm sick of going to school looking like I'm five months pregnant and feeling dizzy and tired. I just want to feel good. Someone in my family's birthday is coming up and I'm not going to eat her birthday cake, instead I'm making these special magic square bars so that I don't bother anyone not eating a desert, and I'll get to celebrate too. My mom pressures me to cheat, and my family thinks that part of it is all in my head. Even though my dad and family have seen my stomach swell up and get hard and see me in pain. I'm obviously not getting support from my family, they all want me and my mom to see a doctor except my mom, she's afraid something else is wrong with her (ie. colon cancer). You can't test for intolerances or IBS I guess, so it'd be pretty pointless. I know what makes me sick, so I won't eat it...simple, right?

Anyways, any recipies or support would be appreciated and make me very happy. Basically I can't have processed foods or grains. I'm sick of guessing what I can and can't eat, so I'll stick with meat, some dairy and produce. Please help me.. I can't do this by myself anymore :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

Don't be foolish with your life and see a GI ASAP... You & your Mom need medical advice.. The gluten may be causing your Mom to act foolishly with her future by not being diagnosed... One's chance of cancer rises about 25% with Celiac & consuming gluten...

Newbee Contributor

Best to see a good doctor who will give you some tests. They really should be ordering some tests before they tell you IBS. I was told I had IBS years ago but they didn't test for anything. Years later I asked for the celiac blood test (thinking I didn't have it of course but wanting to rule it out) and I came out positive with lots of damage showing up when they finally did the biopsy. And even if they want to order a seemingly scary test like a colonoscopy or endoscope, turns out these really are not as bad as they seem. I am the BIGGEST fraidy cat of anything like that but I have to admit the endoscope I had did not hurt or anything. I've heard colonoscopy is the same. You'll feel a lot better about things if you have someone run tests and tell you your fine. Then you will know for sure. Good luck.

GFinDC Veteran

Just remember you need to keep eating gluten until the tests are complete. Otherwise they are much less reliable.

The blood antibody tests are simple and you get results in couple weeks generally. The endoscopy is not always needed. If you have symptoms and they improve going gluten-free then an endoscopy seems pointless IMHO.

Your mom could get the antibody tests too. She might find her life much more pleasant on gluten-free if she is celiac.

You have the right idea about eating gluten-free. Avoiding the processed foods is a good start.

BarbieGirl Newbie

My mom kinda messed up her intestines before all this stuff came up for her...she ate protein bars (I warned her the label said do not consume so much or else it causes digestion issues), and carbonated flavored water, and that was about all she ate. Now she eats greek yogurt with stevia and cinnamon and raspberries, with water with lemon juice and stevia in it. She cheats all the time anyways, she'll binge of junk food and eat leftovers all the time. She's always sick. Like I said, I'm fifteen and can't just go to the doctor?

Plus my dad just got laid off so we have no money and insurance is stopping anyways.

Thanks for your advice though :)

GFinDC Veteran

Malabsorption can cause cravings. So can gluten withdrawal. If your body isn't absorbing vitamins and minerals properly, then it gets deficient and you can get cravings for foods. That might be happening to your mom. After going gluten-free and healing the gut, those minerals and vitamins can be absorbed again, and the cravings should subside.

You don't have to get tested to follow the gluten-free diet. People don't need a doctors permission to choose what they will eat. Some people now a days go gluten-free just because it is a healthy diet. Eating whole foods is not more expensive than eating processed foods either, it is cheaper. Plus if you eat whole foods you aren't getting all the chemical preservatives and food colorings etc that they add to processed foods. Just that change can be helpful if you are sensitive to those things.

Kelby Rookie

I agree, the safest thing you can do in this situation is see a doctor.

I am not going to lie, but even when the slightest thing is bothering me, I take the time to go and see a doctor. I am not sure if this is more difficult in the US because of the private system, but I think in this situation, money shouldnt be an issue any ways.

Not to mention, you could be totally off on your guess about gluten, and it could be any number of different allergens causing you grief. The only way you are going to know for sure is to see a doctor.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.